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Arnold Chiari Malformation (109 members)

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Re: Ibuprofen — I haven't had any side effects that I am aware of and I take it all the time...

Re: Craniosacral therapy — No side effects - been using a new protocol which is a combination of gentle chiropractic care with modified craniosacral therapy and it is helping beyond belief!!! Check out this article about it:

http://littleadjustments.wordpress.com/2010/12/30/could-a-headache-be-a-brain-herniation/

Re: Head pressure — I have arnold chiari malformation. Still have a lot of pressure in my head (mostly sides and back). Feels like it is going to pop...

Re: Head pressure — 2 months after going on a cruise and an airplane, I still have pressure in my entire head.

Re: Decompression surgery — I had decompression surgery in 1999. I thought all was well, but as the years went on I have noticed many different things happening to me that I do not understand. I still have headachs (but not as bad or offten) I have sever and constant neck and schoulder pain along with extreme pain in my legs and ankles, so bad that at times I don't think I can stand up. I have trouble sleeping and always feel "run down", my memory is very limited and I have a very hard time keeping work or finding a job that allows me to support my 2 children (I'm a single mother). I have seen that many people recieve disability, but I don't know how to go about that and what I need to provide them, and I don't know if I waited too long to apply for it, but all of these symptoms and more have just come to light. I thought I was going crazy until I found this web site and read that all this stems from Chiari. If anyone can help I would love it. Thank you.

Re: Decompression surgery — I have Arnold Chiari Malformation. I was told it was type 1. I had horrific symptoms for four years. I then underwent full decompression surgery, with a c1 laminectomy, and duraplasty with bovine pericardium tissue. That was 10 years ago. I still have excessive sweating, narcolepsy-like symptoms, tachycardia, teary eyes, runny nose, severe fatique and trouble with memory. Some symptoms came on AFTER the surgery. Help!!!

binary01
Re: Decompression surgery — I have had the full decompression as i have had several syrinx's with it, had a occipital craniotomy, C1 laminectomy, and a duraplasty with my own pericranial tissue for the graft, I am only 4 weeks post-op, so i havent noticed any changes in anything yet, just alot of pain and stiffness, but hope to maybe have alot of positive things to come later