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Arnold Chiari Malformation (169 members)

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Anyone with this problem should please do contact doctor climent Scott now he will help you too.
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nicole02
I was diagnosed July last year with Chiari after suffering for years. I had decompression surgery September of last year. The surgery worked wonders for me! As soon as I woke I realized I felt better than I had in years! But now I have been diagnosed with mitral valve prolapse syndrome. I am wondering if there is any connection to these two...

flerrie
I was diagnosed 30 years ago. 6 years ago neuro gave me radio therapy rhizotomy (tin needle under anesthetic to stun nerve in neck that relay pain message) andstarted to use mirtazapine meds. Made all the difference to pain. Use no pain meds at all. Do feel pressure and tiredness and all the rest of it, but no extreme pain. Took another one after 2 years. After another year pressure made operation unavoidable but even operation was not very painful. After 3 years I still use no pain medication at all, just mirtazapine and for the balance Lamictin. Depression, pain, balance under control. A blessing.

i have had the surgery almost fourteen years ago, had five vertebra fusion ,halo for three months , I have lived with pain since. I have been on strong pain meds. for years . I pray that others wont have to go through the ordeal I have

Re: Ibuprofen — I haven't had any side effects that I am aware of and I take it all the time...

Re: Craniosacral therapy — No side effects - been using a new protocol which is a combination of gentle chiropractic care with modified craniosacral therapy and it is helping beyond belief!!! Check out this article about it:

http://littleadjustments.wordpress.com/2010/12/30/could-a-headache-be-a-brain-herniation/

Re: Head pressure — I have arnold chiari malformation. Still have a lot of pressure in my head (mostly sides and back). Feels like it is going to pop...

Re: Head pressure — 2 months after going on a cruise and an airplane, I still have pressure in my entire head.

Re: Decompression surgery — I had decompression surgery in 1999. I thought all was well, but as the years went on I have noticed many different things happening to me that I do not understand. I still have headachs (but not as bad or offten) I have sever and constant neck and schoulder pain along with extreme pain in my legs and ankles, so bad that at times I don't think I can stand up. I have trouble sleeping and always feel "run down", my memory is very limited and I have a very hard time keeping work or finding a job that allows me to support my 2 children (I'm a single mother). I have seen that many people recieve disability, but I don't know how to go about that and what I need to provide them, and I don't know if I waited too long to apply for it, but all of these symptoms and more have just come to light. I thought I was going crazy until I found this web site and read that all this stems from Chiari. If anyone can help I would love it. Thank you.

Re: Decompression surgery — I have Arnold Chiari Malformation. I was told it was type 1. I had horrific symptoms for four years. I then underwent full decompression surgery, with a c1 laminectomy, and duraplasty with bovine pericardium tissue. That was 10 years ago. I still have excessive sweating, narcolepsy-like symptoms, tachycardia, teary eyes, runny nose, severe fatique and trouble with memory. Some symptoms came on AFTER the surgery. Help!!!

binary01
Re: Decompression surgery — I have had the full decompression as i have had several syrinx's with it, had a occipital craniotomy, C1 laminectomy, and a duraplasty with my own pericranial tissue for the graft, I am only 4 weeks post-op, so i havent noticed any changes in anything yet, just alot of pain and stiffness, but hope to maybe have alot of positive things to come later