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Winner of Amgen Patients | Choices | Empowerment Competition Emerging Star of HealthCare Engagement Award
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1,000 Patients Rate 54 Treatments for Endometriosis

For the live-updated, interactive version of this infographic, click here.

 

Endometriosis was the second condition we started with at CureTogether. We’ve been reluctant to publish this study until now because it’s quite controversial. But with detailed participation from over 1,000 patients, we decided it was time.

What’s the controversy? The #1 patient-rated treatment for Endometriosis is major surgery: hysterectomy.

We heard from some very concerned endometriosis activists about this, who don’t want women to go out and electively undergo such a radical procedure without trying gentler approaches first. So take this as a caveat – we’re not advocating that you get a hysterectomy, we’re just reporting the results of a patient survey.

The rest of the results are in the graph above, which is divided into four squares…

- Top right: the most popular and effective treatments (including Heat pads and Vicodin)

- Top left: effective treatments that not many people have tried, so they may be options to think about (including Marijuana and Physical therapy)

- Lower right: very popular but not very effective (including Birth control pills and Exercise)

- Lower left: neither popular nor effective (including NuvaRing and Depo-Provera)

Where did this data come from? This is the result of a 3-year CureTogether study on Endometriosis. To thank everyone for participating, we’re publishing this study openly and freely.

This is part of our regular series of research findings. Of course, with each of these findings, there is a potential bias in patient self-selection and recall. Every research study has some bias, so we present these findings as just what they are – patient-reported data – to stimulate discussion and generate new insights for further research.

Please tweet, blog, or pass this along to anyone who can benefit or is interested in Endometriosis. Thank you!


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