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Crohn’s Study Results: 29 Treatments Rated by Patients

For the live-updated, interactive version of this infographic, click here.

We’re excited to announce the very first results of our ongoing study of Crohn’s Disease. At CureTogether, 178 people with Crohn’s came together to rate 29 treatments. When we gather 1,000 treatment ratings for a condition, we publish an infographic, and Crohn’s has just crossed that threshold.

Patients rate small, low fiber, gluten-free meals as helpful for their symptoms, as well as stress reduction, steroids, and LDN (see the top of the green part of the chart). They rate a high fiber diet, aloe vera, and Pentassa as making their symptoms worse. (see the red part of the chart above.)

The top 10 overall treatments reported for Crohn’s Disease are, as a list:

1. Low-Dose Naltrexone (LDN)
2. Surgery
3. Steroids
4. Humira
5. Cannabis
6. Specific Carbohydrate Diet
7. Remicade
8. Stress reduction
9. Small meals
10. Gluten-free/low fiber diets

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The rest of the results are in the graph above, which is divided into four squares…

- Top right: the most popular and effective treatments (including stress reduction, small meals, and probiotics)

- Top left: effective treatments that not many people have tried, so they may be options to think about (including Humira and a Specific Carbohydrate Diet)

- Lower right: very popular but not very effective (including Pentassa and Asacol)

- Lower left: neither popular nor effective (including Imuran and chiropractic)

––

Where did this data come from? This is the result of a 3-year CureTogether study on Crohn’s DiseaseTo thank everyone for participating, we’re publishing this study openly and freely.

This is part of our regular series of research findings. Of course, with each of these findings, there is a potential bias in patient self-selection and recall. We present these findings as just what they are – patient-reported data – to stimulate discussion and generate new insights for further research.

Please tweet, blog, or pass this along to anyone who can benefit or is interested in Crohn’s Disease. Thank you!


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13 Responses to “Crohn’s Study Results: 29 Treatments Rated by Patients”

  1. Interesting and appreciated but why so few people involved? 178? There are lots of groups out there where you could gather data from a much larger set and make the results even more valuable. Here are a couple of the larger sources you might consider getting participants from for a follow-up or larger study:

    http://www.healingwell.com/community/default.aspx?f=17
    Over 100,000 registered members of the forum but Crohn’s is one of the largest of the 33 different diseases included in the forum.

    https://www.facebook.com/LetsTalkCrohns
    2,482 members as of 9/20/11

  2. Thanks Robert!! Well, we don’t generally like to go out and toot our own horn, so our studies spread by word of mouth. If you would like to let people know about the study, feel free to direct people to the CureTogether Crohn’s Disease survey at http://curetogether.com/crohns-disease/survey/symptoms/
    Alex :)

  3. If you ever wanna do a study with my group I run would be happy to help! It runs around 3,500 members. http://www.facebook.com/ItTakesGuts

  4. Thanks so much Aaron! We’d love for your group to participate! Here is the survey link that you can spread – http://curetogether.com/crohns-disease/survey/symptoms/

  5. I have UC a close relative of Crohns, and tried all the mainstream medications without any real results. I took a leap of faith and tried LDN with SCD (modified to include rice) and within 6 weeks show much improvement and within 8 weeks went into remission. Wow, this is a wonder drug with the help of diet to aid in healing of the inflammed colon. I got my life back, after 8 years of flare….try LDN, because it works. Go to a regular MD to get LDN if GI not willing, support request with the clinical trial from Penn Univeristy on LDN and Crohns. My MD perscribed one year perscription without hesitation, and it WORKS! Blessings to you in your healing journey!

  6. Love this kind of data, its awesome to see that the top 2 treatments that are both legal and non-toxic are LDN and the Specific Carbohyrdate diet. Cure together is a great resource and I hope more people contiune to participate. I talk with hundreds of people who have Crohn’s a month on my blog http://scdlifestyle.com and without a doubt SCD works for them. Gretchen is just another example of what you can do with diet modification.

    If your wondering if SCD will work for you, I would say yes if you create your own custom version of it, but honestly for everyone with digestive issues they just need to give it a try for 30 days. On our blog we give away a free guide to get you started so check that out if your confused!

  7. Thanks for posting this! Any chance you have a similar study for UC(Ulcerative Colitis), though they are similar, they are also different.

  8. Hi Joel,

    We do have a UC study, but it doesn’t have enough data yet for a full infographic – you can see preliminary results here – http://curetogether.com/ulcerative%20colitis/treatments/pop/

    Thanks!
    alex :)

  9. The most effective treatment I have used is helminth therapy. Where is this on the list of treatments?
    Helminth Therapy works better than any medical treatment and has the least side affects, and is more cost effective. Helminthes have been providing humans with immune system care for thousands of years! It is a symbiotic relationship.
    I have been suffering with CD for 28 years and the only treatment that has worked is Helminth Therapy. I have had surgery, and was due for more just prior to discovering Helminth Therapy. Most Doctors are ignorant of the HT research.
    I have been symptom free for 5 years, can eat whatever I want and have no more allergies is a bonus too. i am healthier than I have ever been thanks to Helminthes!
    Cheers!

  10. This is excellent. It has valuable information I haven’t seen anywhere else. There are some minor problems: 1. Pentasa is misspelled. 2. Some points are not labelled. One of the two points near Probiotics, one of the two points near Cannabis, one of the two points near Remicade, one of the two points near 6-MP.

  11. [...] Yet the diet’s Wikipedia page has been challenged — not important enough! There’s a Chinese proverb: Those who say it can’t be done shouldn’t interrupt those doing it. Or delete their Wikipedia page. For his part, Reid is making a documentary about others like himself, who have used unconventional ideas to get relief from Crohn’s. Research related to SCD. CureTogether survey of Crohn’s treatments. [...]

  12. This is a great chart, however, there are more dots than treatments, what are the other treatments represented by those dots?

  13. Remicade is a very good treatment, it gave me a good appetite and had me feeling great. But it wasn’t consistent, I would feel good for a week and then feel not so good. I now have to look for another treatment to turn to. I am not at all considering Humira because of previous experiences with injections. Are there any more treatment plans that are not injections, but possibly infusions?

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