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Winner of Amgen Patients | Choices | Empowerment Competition Emerging Star of HealthCare Engagement Award
Mayo Clinic Award - LeftA winner of the Mayo Clinic iSpot Competition for Ideas that will Transform HealthcareMayo Clinic Award - R

Crowdsourced Patient Experience

September 15th, 2010 Alexandra Carmichael Posted in Patient Stories, Presentations No Comments »

This is for you.

As part of our entry for the Ashoka Changemakers’/Amgen Foundation Patients| Choices| Empowerment competition, we put together this video with stories from some of our members.

It’s to thank you and show you how people are being helped and how we’re moving forward. I hope you enjoy it! Please also feel free to enter a comment at the Ashoka site to show your support for CureTogether winning the competition. Thanks!!

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The Future of Health in 2020

August 19th, 2010 Alexandra Carmichael Posted in Presentations, Random Company News No Comments »

IFTF’s HealthCare 2020 map – click here for the full version


Our friends over at Institute for the Future have released their vision of health and healthcare in 2020. We’re excited that CureTogether is included on their map!

They placed CureTogether at the intersection of taking a Commons approach (self-organized participatory solutions that bring a new culture of cooperation) to Making Information Actionable (filtering and integrating health-related information in meaningful ways).

What do you think of their vision for the future of health and healthcare?

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Top 3 Trends in Participatory Medicine

January 26th, 2010 Alexandra Carmichael Posted in Presentations 4 Comments »

Participatory Medicine: new health insights from patient generated data

CureTogether co-founder Daniel Reda gave a talk this morning via tele-presence at the Social Media in Healthcare conference in Zurich, Switzerland.
He talks about the 3 biggest trends in participatory medicine, why this is happening now, and where it’s going in the future. Happy slide-watching!
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Winning Mayo Clinic Talk on the Future of Health

October 1st, 2009 Alexandra Carmichael Posted in Events, Health Tracking, Presentations No Comments »

Click here to watch this talk

Picture 12

I was recently at the Mayo Clinic Transforming Healthcare Symposium to give a talk on how Self-Tracking will change the future of health. Here is an overview of the talk, as well as slides and video… Read the rest of this entry »

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Sneak Peek: Healthcare in 2020

June 11th, 2009 Alexandra Carmichael Posted in Events, Presentations 1 Comment »

This week I got to attend the Institute for the Future (IFTF)’s Health Horizons picture-9Conference in San Jose. Kathi Vian invited me to join her wonderful panel on Building the Health Commons, along with Tori Tuncan of Lend4Health and Dr. Kelly Travers of MD Health Evolution. My slides on “Patient-generated data” are below, although I’m not sure they stand alone without me talking through them.

The trends and forecasts presented by IFTF for what healthcare will look like in 2020 were striking, inspiring, and cautionary. 100 people from all manner of health-focused organizations were there, sharing ideas and brainstorming “if only…” scenarios in Open Space sessions.

2020 Forecasts

Since the meeting was for IFTF clients, I’m not allowed to get into too many details, but I can talk about general trends. The most interesting trends for me had to do with the increasing role of commons in healthcare, the seamless and ubiquitous presence of sensors and health-related technology, and the challenges of making information actionable.

Video scenarios were presented for both positive and negative possible futures. Ted Eytan did a very cool presentation on kp.org, which has demonstrated amazing adoption. Bob Johansen talked about Ten New Leadership Skills for an Uncertain World. And around the room, I heard a lot of talk about Diabetes in particular, and incentives in general for how to encourage people to make positive changes for their health.

Quantified Selves

In the “if only we were all quantified selves…” open space session I led, people asked a lot of questions about what to track and what can be learned from tracking. The conversation wandered from epigenetics and Bayesian statistics to garbology (studying people’s garbage to see if they’re tracking truthfully) and gratitude.

One thing that surprised me was a question about how to track “being present” and how to measure the effect of “giving” behavior in your life. Applying quantitative principles to qualitative or spiritual behaviors and states would be an interesting study. Someone also suggested having the Quantified Self group agree to a collective experiment where we all track a particular thing for a defined period of time and compare our results – great idea!

We talked about what would happen if everyone had their genetic, health, and lifestyle data pooled together in a big open commons. While the challenges would be privacy, security, and effective analysis, the potential is to cure disease, understand behavior, and effect positive change for individual and collective health.

Now that’s an exciting future.

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Daniel’s Podcast for Pharma Marketing Blog

June 1st, 2009 Alexandra Carmichael Posted in Presentations, Random Company News No Comments »

Last week Daniel did a live podcast interview with John Mack for the Pharma Marketing Blog. He talks about how CureTogether got started and what patients are discovering on the site. Here’s the streaming audio below (about 15 minutes long).

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CureTogether Founders Caught on Video!

May 28th, 2009 Alexandra Carmichael Posted in Presentations, Random Company News 2 Comments »

At long last, we’re releasing recent videos of both of us speaking at the Quantified Self meetups.

Daniel gives a quick, early overview of CureTogether from December 2008, and Alexandra talks about who to trust for health information in March 2009.

Enjoy!

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Alexandra Carmichael on trust and health information sources from Kevin Kelly on Vimeo.

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Tim Ferriss and Kevin Rose on Open Source Clinical Trials

May 15th, 2009 Alexandra Carmichael Posted in Open Source Research, Presentations, Random Company News 1 Comment »

The second video in a series of two famous buddies discussing random things, in the clip below Tim and Kevin talk about music, open source clinical trials, CureTogether (about half way through), and their favorite knives. The open source health discussion is impressive, the rest is good fun. And check out Tim’s shoes!

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Random Episode Numero 2 from Glenn McElhose on Vimeo.

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How to Use Twitter to Spread Your Message

May 5th, 2009 Alexandra Carmichael Posted in Presentations, Random Company News 2 Comments »

Getting your message out is the biggest challenge in the crowded online space. Using Twitter has helped us at CureTogether (http://twitter.com/accarmichael), and it can help you too. Here’s how.
1. Follow conversations about your cause
At http://search.twitter.com, you can search for any keyword and see what everyone on Twitter is saying about it, live. It’s a great way to find people to follow that are interested in the same things you are.
2. Be a real-time presence
When you see a conversation about your cause, you can jump right in and be part of it. A live response is a great way to diffuse any negative comments about your organization, give thanks for positive ones, and put a real face and personality to your cause.
3. Build community and momentum
Twitter is a great platform for micro-blogging. It’s like releasing mini press releases every few minutes on anything that is relevant or happening at your organization. A good rule of thumb for building a large audience: follow people with similar interests, and they will follow you back. Use a service like http://tr.im to track how many people click on your posted links.
4. Stay up-to-date on news and events
With so many people posting articles, meetups, and cool ideas, Twitter is a great way to know the latest happenings in your field. You can easily keep up with what your competitors are doing and where your customers or members are hanging out.
5. Case Study: CureTogether
CureTogether presented at the Health 2.0 conference at the end of April in Boston. While Faren was doing her awesome demo on stage, I was answering the audience’s tweets live. Here are some sample comments from the conference about CureTogether:
- @1samadams: a massive tip of the well done hat to @accarmichael & curetogether – power to the peeps!
- @ePatientDave: Liking what I’m seeing of CureTogether demo. Such a difference when patients themselves design it!
- @swisshealth20 curetogether.com  demo – good statistical tools on Symptoms – Treatments – Causes – Related Conditions
- @DrGwenn: Cure together team scientists & patients of chronic dx.   now THAT’S 2.0! best of show?
And here’s a conversation that happened live, during the CureTogether demo:

- @Doctor_V: Examples of how curetogether has sped the research cycle for migraine?? If not, how would it??
- @accarmichael: @Doctor_V Research questions curetogether has opened up so far have been in comorbidities – what conditions occur with migraine?
- @Doctor_V: @accarmichael responded immediately to my question…thanks Alexandra
- @accarmichael: @Doctor_V You’re welcome! Thanks for the question :)


So Twitter is really an immediate, personal way of interacting with the community
of people you’re trying to reach with your message.

A great analysis of all the Health 2.0 Tweets was put together by Chris Hogg (@cwhogg).
He assembled his findings into a very cool slide presentation, below. Look for CureTogether
on slides 16 and 17.

How have you used Twitter to spread your message?
Are you inspired to give it a try?

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View more presentations from Chris Hogg.
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Presentation: Crowd vs. Experts

April 1st, 2009 Alexandra Carmichael Posted in Presentations 2 Comments »

Here are my slides from the Quantified Self meetup last night. Generated some good discussion on patients conducting their own clinical trials and the possibility of statistics replacing the need for experts.
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