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Cushing's Syndrome (213 members)

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Re: Muscle weakness — The muscles on my body. all they want is to be stretched and held there. Otherwise they just feel "creepy crawly" and i find it hard to lift things like i used to

Re: Upper body obesity — I have gained over 60 lbs in approx 6 years

Re: Fatigue — never having the energy to do everything that I like to do. Whatever sleep i am able to get, is never enough.

Re: PItuitary surgery — The second operation I had an amazing surgeon who specializes in Pituitary surgery, he removed both tumours, but I had a very bad CSF leak which he had to go in and seal, but unfortunately for some unknown reason I stop breathing and was ventilated for three days which has caused a lot of post op stress. In all the operations they preformed they have never had a case like mine, but the endoscopic surgery was great, I have had no side effects from that. With my first operation the ENT was totally unskilled in this surgery and I had bad facial bruising and had to have my nose reconstructed 6 years later as it started to collapse, he also caused bad nerve damage in my face and I have facial and tooth pain every day of my life.

Strangely after the second operation I no longer like sweet food but enjoy sour foods

Re: PItuitary surgery — I have had Pituitary surgery twice in Aug 2000 and Feb 2011 , This year they removed two tumours, both operations have not been successful, I still have the disease.

Re: Supraclavicular fat pads — sure it would be my pleasure. my supraclavicular fatty deposits was caused by the drug kenalog 40. i read several testimoniials on folks who fell victim to doctors that withheld the nasty side effect of kenalog 40 as did my pain doctor....as a matter of fact he didn't even tell me the name of the medication he was about to use. instead he just said it was a steriod. oviously all doctors are very aware of the dangers when using this drug....it neds to be taken off the shelves. insteads they continue to use it and abuse the patient.

sure it did stop my pain that i had been living with for ten long years of my piriformis muscle.. sitting, walking, and standing was very, very painful that over the ten yrs the pain had only became debilitating...but it also left me with a worse condition to deal with even with no pain. if i new then what i no today i would have rather kept that unrelenting buttocks left-leg pain.

cushing diesease was never a suggestion from any doctor for years..now with my research i believe i need to see a encrintogilist. i don't know what good this message will do but what the hell