Get Your Fibromyalgia Score! Take the survey. See how you compare. Get new treatment ideas.

Already a member? Sign in


Browse conditions


Fibromyalgia (1,887 members)

StatsSurveyDiscussInfographic

To leave a comment, sign in


Hi Everyone! My name is Twenna Clyton. I was diagnosed with HERPES 2 in April of 2012 when I was 24 years old who just completed my MA in sociology at the University of Northern Colorado where I explored the role of stigma in the process of disclosing a genital herpes diagnosis.I have wanted to get this virus cured, I am happy to share that with you! few weeks ago i came on search on the INTERNET if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address (greatgumblaspellhome@outlook.com) and advise we should contact him for any sickness that he would be of help so i told my husband about it the he ask me to write him because this pain has been constant especially in my knees. so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that it was going to be cured!! then i took the medicine he sent me, which few weeks later i started experiencing changes all over me as the Dr assured me that i have cured hence i have taken the medicine and then after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE. I can understand that lots of people are been diagnosed with this same virus so am excited to be able to share some of my experiences and thoughts about this man that you can as well contact him for help living with genital herpes is not a good thing..HERE ARE HIS CONTACT: EMAIL : (greatgumblaspellhome@outlook.com) OR YOU CAN AS WELL VISIT HIS his website http://eromosalspiritualtemple.webs.com BETTER STILL CALL OR whatsApp HIM viA+2348161850195..GOD BLESS

Hi Everyone! My name is Twenna Clyton. I was diagnosed with HERPES 2 in April of 2012 when I was 24 years old who just completed my MA in sociology at the University of Northern Colorado where I explored the role of stigma in the process of disclosing a genital herpes diagnosis.I have wanted to get this virus cured, I am happy to share that with you! few weeks ago i came on search on the INTERNET if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address (greatgumblaspellhome@outlook.com) and advise we should contact him for any sickness that he would be of help so i told my husband about it the he ask me to write him because this pain has been constant especially in my knees. so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that it was going to be cured!! then i took the medicine he sent me, which few weeks later i started experiencing changes all over me as the Dr assured me that i have cured hence i have taken the medicine and then after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE. I can understand that lots of people are been diagnosed with this same virus so am excited to be able to share some of my experiences and thoughts about this man that you can as well contact him for help living with genital herpes is not a good thing..HERE ARE HIS CONTACT: EMAIL : (greatgumblaspellhome@outlook.com) OR YOU CAN AS WELL VISIT HIS his website http://eromosalspiritualtemple.webs.com BETTER STILL CALL OR whatsApp HIM viA+2348161850195..GOD BLESS

Hi Everyone! My name is Twenna Clyton. I was diagnosed with HERPES 2 in April of 2012 when I was 24 years old who just completed my MA in sociology at the University of Northern Colorado where I explored the role of stigma in the process of disclosing a genital herpes diagnosis.I have wanted to get this virus cured, I am happy to share that with you! few weeks ago i came on search on the INTERNET if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address (greatgumblaspellhome@outlook.com) and advise we should contact him for any sickness that he would be of help so i told my husband about it the he ask me to write him because this pain has been constant especially in my knees. so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that it was going to be cured!! then i took the medicine he sent me, which few weeks later i started experiencing changes all over me as the Dr assured me that i have cured hence i have taken the medicine and then after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE. I can understand that lots of people are been diagnosed with this same virus so am excited to be able to share some of my experiences and thoughts about this man that you can as well contact him for help living with genital herpes is not a good thing..HERE ARE HIS CONTACT: EMAIL : (greatgumblaspellhome@outlook.com) OR YOU CAN AS WELL VISIT HIS his website http://eromosalspiritualtemple.webs.com BETTER STILL CALL OR whatsApp HIM viA+2348161850195..GOD BLESS

Hi Everyone! My name is Twenna Clyton. I was diagnosed with HERPES 2 in April of 2012 when I was 24 years old who just completed my MA in sociology at the University of Northern Colorado where I explored the role of stigma in the process of disclosing a genital herpes diagnosis.I have wanted to get this virus cured, I am happy to share that with you! few weeks ago i came on search on the INTERNET if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address (greatgumblaspellhome@outlook.com) and advise we should contact him for any sickness that he would be of help so i told my husband about it the he ask me to write him because this pain has been constant especially in my knees. so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that it was going to be cured!! then i took the medicine he sent me, which few weeks later i started experiencing changes all over me as the Dr assured me that i have cured hence i have taken the medicine and then after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE. I can understand that lots of people are been diagnosed with this same virus so am excited to be able to share some of my experiences and thoughts about this man that you can as well contact him for help living with genital herpes is not a good thing..HERE ARE HIS CONTACT: EMAIL : (greatgumblaspellhome@outlook.com) OR YOU CAN AS WELL VISIT HIS his website http://eromosalspiritualtemple.webs.com BETTER STILL CALL OR whatsApp HIM viA+2348161850195..GOD BLESS

Hey!
Just found this dispenser to help me manage my medication. I'm gonna be a beta tester, just needed to fill this up: http://linehea.lt/1l63JuZ. Cheers

I have been suffering from (HERPES) disease for the last four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr Gumbla on : (greatgumblaspellhome@outlook.com) or thought his website http://eromosalspiritualtemple.webs.com or call him with +2348161850195.. THESE ARE THE THINGS DR ERO CAN ALSO CURE.. GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORT SIGHTEDNESS PROBLEM, Stroke, Bring back ex lover or wife/husband....sir i am indeed grateful for the help i will forever recommend you to my friends!!!

I have been suffering from (HERPES) disease for the last four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr Gumbla on : (greatgumblaspellhome@outlook.com) or thought his website http://eromosalspiritualtemple.webs.com or call him with +2348161850195.. THESE ARE THE THINGS DR ERO CAN ALSO CURE.. GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORT SIGHTEDNESS PROBLEM, Stroke, Bring back ex lover or wife/husband....sir i am indeed grateful for the help i will forever recommend you to my friends!!!

I have been suffering from (HERPES) disease for the last four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man Dr Gumbla and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr Gumbla telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email Dr Gumbla on : (greatgumblaspellhome@outlook.com) or thought his website http://eromosalspiritualtemple.webs.com or call him with +2348161850195.. THESE ARE THE THINGS DR ERO CAN ALSO CURE.. GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORT SIGHTEDNESS PROBLEM, Stroke, Bring back ex lover or wife/husband....sir i am indeed grateful for the help i will forever recommend you to my friends!!!

From: http://www.vitamindwiki.com/Handout+on+Vitamin+D+%28Hormone+D%29+and+sleep+-+Gominak+2012 "If you have a neurologic problem that is severe enough to see a neurologist, you probably do not heal your body in sleep as perfectly as you once did. Most of us who have headaches, tremor, balance difficulties, vertigo, burning in the feet, depression, body pain, or memory loss have abnormal sleep and, surprisingly, fixing the sleep can fix the neurologic problem. From 2005-2009 I performed sleep studies on most of my patients and used medications or sleep masks to try to help their sleep. In 2009 I accidentally discovered that most of my patients had abnormal sleep because they were vitamin D deficient. Vitamin D deficiency is probably why you are coming to see me today even though you don’t know it. Though we might end up talking about vitamin D I am not really as interested in vitamins as I am in sleep".
I suggest that you read that article in full, and check out http://www.vitamindwiki.com/tiki-index.php?page_id=383

View my comprehensive previous answer about vitamin D at https://au.answers.yahoo.com/question/index?qid=20140606070917AAfoGCl If supplementing, (the non preferred method, according to www.vitaminDcouncil.org ) use only vitamin D3. Also view http://www.vitamindcouncil.org/about-vitamin-d/how-do-i-get-the-vitamin-d-my-body-needs/ & www.sawyer.com/understanding-uva-uvb/ & http://articles.mercola.com/sites/articles/archive/2014/10/19/cholesterol-sulfate.aspx Consider the UV meter shown in vitaminDcouncil.org at Sunfriend.com

Maintaining optimal levels of vitamin D (59% of Americans have levels that are depleted, or deficient; 95% for those with greater melanin pigmentation) will reduce the risks of contracting many diseases, and speed recovery.

The govt. RDI of 400 IU daily is long outdated, according to vitaminDwiki, and Dr. John Cannell, at vitaminDcouncil.org, Dr. Weil, at drweil.com, Dr. Ben Kim, at drbenkim.com, Dr. Axe, at draxe.com, Dr. Gominak, a neurologist at drgominak.com and Dr. Mercola, at mercola.com all agree that an RDI of 5000 IU daily is not excessive, although higher levels may be required as people age, and / or put on weight. My doctor, on the basis of several peer reviewed studies, also agrees that an RDI of 5000 IU daily is not excessive, and it is virtually impossible to get the required amount from dietary sources, without the risk of toxicity.

There are currently differing medical opinions on what is the ideal range for achieving maximal benefits, with minimal risks; I formerly adopted 45-52 ng/ml (115-128 n mol/l), but am now opting for 60 ng/ml - 80 ng/ml (150 n mol/l - 200n mol/l) with 60 ng/ml (150 n mol/l) as my target.

Vitamin D is not a true vitamin, but a hormonal substrate (secosteroid) that is vitally important for the activation of almost 3,000 genes in the body.

View http://www.fibromyalgia-symptoms.org/fibromyalgia_treatment.html & http://chronicfatigue.about.com/b/2011/01/25/vitamin-d-for-fibromyalgia-chronic-fatigue-syndrome.htm & http://belleruthnaparstek.com/fibromyalgia/2.html Magnesium malate has been promoted for people with fibromyalgia to help break up lactic acid that seems to be part of the fibromyalgia picture. http://articles.mercola.com/sites/articles/archive/2004/08/07/miracle-magnesium.aspx refers.
I am aware that there are multiple medications which can be used to treat it, such as Savella, and Lyrica, (pregabalin) but medications come with risks, and side effects - see www.drugs.com & www.rxlist.com & http://mediguard.org
In my opinion, it may well be best to try the natural and alternative treatments first, to see if they are sufficient; why accept the risks and side effects unnecessarily? Enter "fibromyalgia" in the searchbar at http://www.mercola.com and view the many articles on it. Consider signing up for the regular free Ezine from www.mercola.com, because they are the most visited natural health website in the world. I have learned a lot, and my health and immune system have been greatly helped.
Check out: http://www.earthclinic.com/CURES/fibromyalgia_remedies.html Try specialist acupuncture, as well. The low levels of the neurotransmitter, serotonin, which tend to occur in fibromyalgia can be helped with 5-htp. Google: "5-htp; fibromyalgia" Use 50mg of 5-htp daily, or UP TO 200mg; take with a very low protein meal, to maximise the amount crossing the blood/brain barrier, with no, or extremely little protein 2 hrs before, to 2 hrs afterwards.
Note: http://www.unboundmedicine.com/medline/ebm/record/21375201/abstract/Vitamin_D_deficiency_in_fibromyalgia_ then view: http://drbenkim.com/vitamin-d-facts.htm & http://articles.mercola.com/sites/articles/archive/2008/12/16/my-one-hour-vitamin-d-lecture-to-clear-up-all-your-confusion-on-this-vital-nutrient.aspx Dr. John Cannell, of http://vitaminDcouncil.org advises that the co-factors most often deficient in the American diet, and necessary to optimise its absorption, and utilisation are magnesium, zinc, boron, and vitamin K2 ( http://articles.mercola.com/sites/articles/archive/2011/03/26/the-delicate-dance-between-vitamins-d-and-k.aspx ). I recommend using either health food/vitamin stores, or preferably http://www.lifespannutrition.com/products.asp?catagory=Vitamin%20D or Mercola.com (check them out on vitamin K2 as well; the MK7 isomer which they use is several times more active than other types, and they ensure the highest quality available; I often use their products, although not exclusively).

Give the EFT a good tryout, to see if it helps you. It is free via the searchbar at Mercola.com "EFT" *& "EFT therapists" (also view: http://articles.mercola.com/sites/articles/archive/2011/02/26/dr-john-lowe-on-thyroid-disease-part-1.aspx ) or www.tapping.com or www.eftuniverse.com or www.emofree.com Professional is best. - There is a version for use in public places*, (if you like, you can claim to have a headache, as you massage/lightly tap your temples, but you would then be restricted to subvocalising: saying it to yourself in your mind: "Even though I have fibromyalgia, I deeply and completely accept myself."
One home remedy I have heard of is scalding hot showers (careful). View: http://www.everydayhealth.com/fibromyalgia/treating/fibromyalgia-alternative-treatments.aspx & http://www.everydayhealth.com/fibromyalgia/treating-fibromyalgia-with-excercise.aspx and the other articles; also: http://articles.mercola.com/sites/articles/archive/2011/02/26/dr-john-lowe-on-thyroid-disease-part-1.aspx
S-Adenosyl methionine (SAMe), a derivative of the amino acid methionine that can help with depression, chronic fatigue syndrome, and fibromyalgia. Learn more: http://www.naturalnews.com/028498_antidepressants_clinical_trials.html#ixzz1KtCUZGol and http://www.cidpusa.org/FIBROMYALGIA1.html may be worth looking at.
Anti-inflammatory diet and lifestyle; see http://www.naturalnews.com/035840_fibromyalgia_remedies_solutions.html Google: "fibromyalgia; low dose Naltrexone" View http://www.cortjohnson.org/blog/2013...igue-syndrome/

Adopt a diet with minimal sugars and / or highly processed grain products, with more non starchy vegetables, protein, some complex carbohydrates, such as legumes, (beans, peas, lentils and chickpeas) and brown rice, some sourdough rye bread or seed and nutloaf, and 2, or 3 pieces of fruit, as well as probiotic yoghurt; see http://www.google.com/search?q=mercola+probiotic&hl=en&gbv=2&oq=mercola%3B+&gs_l=heirloom-serp.1.5.0l10.600390.608268.0.613200.11.4.0.0.0.0.1594.2683.5-2j8-1.3.0.msedr...0...1ac.1.34.heirloom-serp..8.3.2682.dGRp4lhiUH0

Xylitol, from health food, or vitamin stores, or stevia, from supermarkets are natural replacements for sugar, also suitable for diabetics. Avoid artificial sweeteners like aspartame; check out http://www.google.com/search?hl=en&source=hp&q=mercola+artificial+sweeteners&gbv=2&oq=mercola%3B+artificial+sweeteners&gs_l=heirloom-hp.1.1.0l2.7914.28631.0.31965.30.26.0.0.0.0.1478.2994.4-1j7-2.3.0.msedr...0...1ac.1.34.heirloom-hp..27.3.2993.3Ce1jolQ7Mg

Meditation, yoga, walking and not pushing self

LDN is a miracle for most who try it and can be protective of all other autoimmune diseases.

Tender points are really trigger points and the 18 points is a ridiculous test but all they know unfortunately. Basical tender point notion was disproved in an important study done in the Netherlands several years ago. As a Trigger Point Myotherapist with Fibro each individual has 100's-1,000's of trigger points. Get rid of them and your body gets out of that horrible pain-spasm-pain feedback loop from the inappropriate fight or flight response we suffer from.

Also Magnesium is the best! I haven't worked with anyone who doesn't have success with Magnesium Glycinate, Threonate (helpful for dementia too as it crosses blood brain barrier) and best of all Magnesium Chloride topical gel from Zechstein seabed. Later increases body tissue levels of Magnesium and keeps it constant after 2 months. Must get pure produce which will cost more if you are sensitive because it can burn or feel itchy.

Stretch class and proper diet makes a big impact, and I can't stress enough proper sleep (melatonin works well here, but I won't knock prescription sleep aides either). I take both probiotics and prebiotics, and strangely, when I take the prebiotics (look up inulin), I no longer crave the processed sugar products, and I know they contribute to making me feel more tired.

As for pain, a low dose of Topamax has been my lifesaver. Most of the other drugs either didn't work, or they worked for a little while and then suddenly stopped. What I do know is that many doctors tend to forget that fibromites are extremely sensitive to medications, they give too high a dose all at once instead of tapering up in baby steps like they should.

After years of being treated with drugs and antianxiety meds, I realized that this was all the allopathic medical doctors had to offer me. I realized it wasn’t a pharmaceutical deficiency that was causing my illness. I eliminated the drugs, implemented a low carb, high healthy fat diet, lots of veggies, light on fruits, worked on healing my imbalanced gut, yoga, meditation, stress reduction, trigger point therapy, massage and My symptoms are 75% improved over what I felt like when I was working with the MDs. Our health care system is driven by a multi-billion dollar pharmaceutical industry that does not care about health at all. I will never go back to that allopathic model.

Fibromyalgia and/or Chronic Fatigue Syndrome - I have found that Vicodin + Adderall have helped the most in managing my symptoms. I generally don't turn to hard-core Western medicine as my first choice, but after years of "alternative therapies," I've found that the RIGHT Western meds have brought back a few hours per day of slight relief.

I think "CFS" and "fibromyalgia" are blanket labels that don't contain much information. These diagnoses probably cover a wide range of individual disorders which have not been sorted out and identified yet.

dfwmom
For juvenile fibromyalgia... 1. Fire the doctor. 2. Fire the school. 3. register at a virtual academy (ours is a public charter, so no cost).

Pain management clinics manage pain, and grade their success by subjective pain scores over time. The worst symptoms of firbro are not the pain, it's nausea, fatigue, dizziness, fibro fog, etc. The medications they give for pain make those symptoms worse.

Pharmacies lie about medications. Lyrica makes you run into walls, and doesn't even help with pain.

Use supplements to help with sleep, such as sustained release melatonin and L-Tryptophan. Accupuncture helps. Exercise, and whole foods.

LISTEN TO YOUR CHILD, and DON'T let other people, not even doctors or teachers, wrestle with you for control. YOU and your child are in charge, and only YOU know what you need, and what is working and what is not.

Doctors can't cure you. If you've tried their medications, and learned biofeedback and had some cognitive behavioral therapy, you've seen their whole bad of tricks. Maybe, the doctor can't help you. But, you can help yourself.

Zork
Xyrem is the only thing I've tried that helped dramatically. On Xyrem I had less pain and stiffness than normal folks. I could sit at the PC all day and not get stiff and sore. Off it now (cost). May try LDN next.

LDN has been a real help but i'm not 100%. My vitamin D is low as well. WBC has been low in the past. I'm too young for this. Ciprofloxacin (anti-biotic) I believe was my trigger. Brain fog sucks, especially when you're 20 years old.

Mindfulness Training. Make is a point to forgive and forget. Don't get angry. Move on. Focus on what you can do and get satisfaction from that.

B.
at the moment i take tramadol,norflex,and savella. It helped great in the beginning but i have been on it for 3 months and it just helps ease it some. Im still in pain all day.. tired. I HATE the way i feel.. since hearing about LDN I'm going to get with my doctor and ask him about it.I can only pray I can find something that will make me feel like ME again :(

Re: Low-Dose Naltrexone (LDN) — This drug was a miracle for me! Migraines, brain fog, bad balance issues -- gone overnight. 9 months in, pain is 60% improved. If you cannot find a DR, call River Pharmacy in Canada or see them online. They will send it via India. It is very cheap. Compound it yourself -- take one 50mg. tablet, crush and dissolve in 50 ml distilled water, use baby doser and start at 1.5 mg/day at bedtime. I am now at 4 mg. Will try 4.5 soon. Cost=$139 for about 9 months! Everyone should try it. Won't work for everyone. It is an opioid antagonist meaning you cannot take any opioid drug along with it. Beware: most doctors including Rheumatologists neither know nor WANT to know about it. Just do it yourself, reading LOTS online first.

Re: Low-Dose Naltrexone (LDN) — Just found out about LDN and would very much like to try it. Does any one know of DR. in NE Texas that would prescribe it???

Re: Guaifenesin — Fibro not fiber.

Re: Guaifenesin — Gave me my life back. Helps with the pain and the fiber fog as well.

Re: Muscle aches in entire body — The never knowing what the next day will bring is so frustrating. The aches and muscle spasms are constant, but the intensity changes daily.

Re: Low-Dose Naltrexone (LDN) — I was on LDN for a year and a half with excellent results. Along with 5Htp, this treatment enabled me to stop taking all pain pills, anti-depressants and sleep meds. Unfortunately, I was then in a car accident , all my symptoms spiked and I was getting no relief from the LDN at all. I have now discontinued it, but hope to try it again in the future. I encourage all of you to at least give it a try. For me, for a time, it was a miracle!

Re: Duloxetine (Cymbalta) — It gave me permanent, uncontrollable twitching. It's been at least six years now, so I don't expect it to ever go away. Half my hair fell out as well, but it has grown back.

Re: Muscle aches in entire body — It feels like when you have the flu and your whole body is just aching. Even your fingers. Add to that...sharp shooting pain and electrical pain. Worse in shoulders, upper back, arms, hands, skin, and feet. This is pretty much every single day although during flares the pain level jumps dramatically.

Re: Low-Dose Naltrexone (LDN) — LDN gave me my life back. Ginny Dudek

Re: Magnesium — Magnesium Citrate is the most bioavailable form and the most effective, sans the laxative effect. Try Magnesium Glycinate to avoid that. Vit C 500mg PER HOUR also works wonders in 24 hours.

Jackabug
Re: Tender points (trigger points) — They need to add more locations beyond the standard-criteria 18! Too many docs, even rheumatologists, think ONLY those 18 are genuine FMS points. Doctors also need to get better at pressing on the actual points. I've had a few come within a centimeter (1/2") of one of my "standard" points, then move on assuming I wasn't sensitive there, when they were just off the mark. If a housecat can find these points (easiest way to give a non-clinical -- i.e. yeah, go to an MD for confirmation but this is what to look for -- diagnosis to someone wondering if they have FMS is to find out if their cat steps preferentially on their trigger points when walking on them) then why can't doctors with years of medical training poke us in the correct spots?

Jackabug
Re: Brain fog — Many days, especially when the weather's good, I have little or no fog. When it's at it's worst, though, I'm useless... can barely form a sentence, flail for words, lose the thread, can't recall priorities (e.g. need to pay bill / take medicine / plan a meal / etc.) for that day.

ISBeagle
Re: Tai Chi — s/b Tai Chi dvd

DiDe
Re: Stress — I believe stress was my major contributing factor and definately contributes to flare ups. My stress is pretty much all job related but I got really bad when combined with house hunting and buying.

DiDe
Re: Physical activity — Controlled excercise is crucial to getting relief and energy back. I do cycle classes, pump - weights and swimming and I feel better instantly. Physical activity like moving house, office, conferences or all day physical jobs exacerbates my symptoms to the point where I need to take a day off and rest.

DiDe
Re: Massage — Has to involve trigger point deep tissue to really work for me.

DiDe
Re: Heating pads/packs — You can buy stick on heat pads that last 8 hours and they are brilliant. I put one on my sore places on my back overnight and I get alot of relief

klay
Re: Magnesium — Fabulous. I felt almost 95% relief within 24 hours and I had a bad case of fibromyalgia. I had tried everything. I tried magnesium chloride which absorbs better than others.

janewhite
Re: Physical activity — I agree with bikerkitty and Magenta: Exercise can worsen the pain, but once I learned to exercise the right way, I got stronger and started feeling better. And of course, the only cure for morning stiffness is movement.

lockhog
Re: Physical activity — I'm trying to figure out if I have fibrmyalgia. I have a lot of the symtoms. trouble sleeping, irritible bowls and bladder, fatigue muscle aches, but my main problem is foot pain that is severe in both feet. They ache so bad it unbelieveable. Also numbness and can't stand the cold at all on my feet. My feet are always cold.

Fibrochondriac
Re: Weather changes — I just moved from Seattle to San Diego. Wow, what a difference! I'll flare if I do too much, but the everyday aches and pains are significantly less. Going from a normal 7-8 to some days 3-4 (on a scale of 1-10...but you knew that right?). I still have the pain and stiffness when I wake up in the morning but still getting away from the damp cold weather really helped.

snodove65
Re: Duloxetine (Cymbalta) — I was allergic to this medication.

Fibrochondriac
Re: Born with it / Genetics — Yeah, I can see where genetics would cause it. My 25 year old daughter was just diagnosed with Interstitial Cystitis...which apparently is related to fibro. I wouldn't wish either on my worst enemy...

Fibrochondriac
Re: Cold weather — Just moved from Seattle to San Diego. Feeling quite a bit better. The pain is still there...but I'm not suffering as much. Does that make sense?

Fibrochondriac
Re: Stress — I had, what was for me, a really high stress job (doing something you hate and getting paid really well for it. So glad it's over!) and I think my reaction to it caused the mother of all flare ups and caused me to, ultimately, lose the paycheck.

Fibrochondriac
Re: Ross River Fever — What is Ross River Fever? Never heard of it and I thought I'd researched fibro to the point of overkill.

Fibrochondriac
Re: Morning stiffness — Morning stiffness? Oh I call that my "crab walk" and it takes a good hour for it to go away on a good day. Too bad there isn't a severity score of "down right ridiculous" because this has to be one of the silliest parts of this disorder. But I try to laugh about things...how else can you handle it?

Fibrochondriac
Re: Avoid gluten — I was amazed at the difference it made. We just moved and I was too tired to cook so resorted to eating take out. Wow, bad move. Serious pain. No more burgers for me!

dvance
Re: Pregabalin (Lyrica) — The lyrica did seem to work, but I gained weight, about 14 pounds; and my eyes changed enough that I had to get new glasses. I quite taking it and most of the weight is still on and my eyesight didn't change back.

chrisz
Re: Zolpidem (Ambien/Stillnox) — I have taken Ambien virtually since it came out. It has been the most effective medication I have taken.

chrisz
Re: Pain in hair/scalp — This seems like a strange symptom, but I can touch the tip of my hair and have it hurt at the roots when I am in a significant fibro flair.

cris_portugal
Re: Avoid alcohol — Lyrica was useless, in fact caused diziness and increased muscle morning stiffness (!); Amitryptiline seems to have helped over the past 6 years but contributes to weight gain, dry mouth and "slow motion" in early hours of the day. Cylobenzaprine helps if taken with amitryptiline, alone for me doesn't seem to have an effect; tramadol and codeine seem to bring moderate improvement in myopains but may cause diziness, also it's not convenient to drive or perform any activities which require focused attention and rapid reflexes, if one needs to be well alert

nicolelbt
Re: Rest — Knowing when to slow down and give myself a break seems to minimize how long flair ups last

Magenta
Re: Physical activity — I have the same experience - it can wipe me out but in the long run, obviously it is crucial.

Magenta
Re: Physical activity — I have the same experience - it can wipe me out but in the long run, obviously it is crucial.

Magenta
Re: 5 HTP — This really seemed to help for a while, but then stopped working - frustrating.

Magenta
Re: Progesterone — I tried this for gyn. issues, but not fibro - it causes me to bloat with crazy mood swings, yuck.

Magenta
Re: Guaifenesin — I haven't tried it at the therapeutic dose yet, so hard to tell.

Magenta
Re: Massage — Has been a lifesaver.

Magenta
Re: Pregabalin (Lyrica) — I took this for both fibro and vulvodynia - I felt a lot of relief within days, but then became painfully bloated and had trouble urinating, so I had to stop

Magenta
Re: Weight gain — I didn't have weight gain from fibro, but it has been up & down because of meds prescribed

jambo1
Re: Antibiotics — have fibro sinces im 19 years old 22 two now tried every thing nutting works my hole life is gone cant work cant drink cant do any thing i love d used to weight life jog swim just sit in every day cant put on weight wen i was 19 i was nearly 11 stone now im 9 stone 5 cant see the light at the end of the tun need a cure cant live like this:(

maree
Re: Excessive antibiotics — was given 80 pills in 10 days.

maree
Re: Magnesium — helped with the pain

maree
Re: Pregabalin (Lyrica) — made it more painful

bikerkitty
Re: Physical activity — both yes and no. If I overdo it, it makes me extremely fatigued. But I found that once I was able to exercise I do feel much better. (this was after 3 years of antibiotics and 3 months of physical therapy to help me get some muscles back).

bikerkitty
Re: Antibiotics — Fibromyalgia is just a diagnosis that they can't figure out whats really wrong. Many people actually have Lyme disease which is somewhat treatble. I improved greatly after 3 years of antibiotics. It's a controversial diagnosis and treatment but I've had a lot of improvement with pain from treatment. igenex.com western blot is the lyme test that is occasionally right. The ELISA test is a waste of your money, don't bother it's almost always negative even if you have lyme since it only tests for one band. Remember that most lyme tests are 70% false negative. I tested unconclusive with igenex test and then after being on antibiotics for three months, I then had a strong positive. They believe this is because if you are really sick then all your antibiodies are actually tied up with bacteria so there's none left to show up in the test. Once you start treatment then you see more free antibodies. I'm not completely better, but I've regained a lot of functionality and now am able to get restoritive sleep even though I still have a lot of fatigue, the pain is much improved.

bikerkitty
Re: Magnesium — IV magnesium temporarily helped

bikerkitty
Re: Avoid alcohol — might help some, not a big improvement.. improves immune system it worked better to drink than any painkiller I had though.

bikerkitty
Re: Avoid caffeine — helped with PMS symptoms not for fibro

bikerkitty
Re: Heating pads/packs — helps a little, temporarily, cold makes it hurt more and causes muscles cramp

bikerkitty
Re: Hot showers/baths — helps temporarily

bikerkitty
Re: Rest — since lack of restful sleep is the problem, this obviously is not helpful.

bikerkitty
Re: Trigger point injections — helped for about a week, was wildly expensive, didn't help that much overall

bikerkitty
Re: Massage — temporary relief

bikerkitty
Re: Duloxetine (Cymbalta) — made me nauseous and suicidal.

bikerkitty
Re: Anxiety — not caused by "fibro"