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Mitral Valve Prolapse (931 members)


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Just found this dispenser to help me manage my medication. I'm gonna be a beta tester, just needed to fill this up: Cheers”

I just turned 48 and I was diagnosed with MVP earlier this year. I have a small build and had trouble gaining weight most of my life, although I really don't feel underweight any more. I began noticing palpitations when I didn't get enough sleep or was stressed about 3-4 years ago. They seemed to be getting more frequent. Mostly feeling a strong heartbeat in other parts of my body. It's a little bit annoying at times. I was diagnosed with irritable bowels 12 years ago and my stomach has always been sensitive to emotion and stress. I sometimes have panic attacks at night and being unable to sleep particularly when a family member is ill. I go crazy with worry for them. This started in my 30's and sometimes would get really bad. Since being diagnosed with MVP though I'm starting to realize that all of this is effected. Now I know better how to combat it and take Valerian Root before bed if I feel a panic attack coming on. I have a slight scoliosis which causes back pain and also flat feet which causes knee and hip pain. 4 years ago I had surgery for a torn miniscus in both knees. I believe it was simply caused by wearing a higher heeled boot one time for a concert. I now wear orthopedic shoes with support which makes a huge difference for me. I find drinking magnesium supplement called CALM, drinking enough water and taking CoQ10 to be helpful in my palpitations. Also staying away from sugar and any forms of caffeine. This is hard because I love to bake and love chocolate. :) I don't have much chest pain, just once in awhile and it is mild. I experience more pain from my back, shoulders and sometimes the neck which causes headaches on occasion. I thank God that I have never had a migraine. I find that I need at least one day a week where I stay home and don't go out. I usually feel quite exhausted. After that I'm fine though. Regular exercise is quite helpful for pain and general overall well being. I have two teenage daughters and live in a foreign country which can be stressful in itself. Overall though, I'm happy to know that what I experience is normal for people with MVP and the more I learn about it, the better I feel. I thank God for everyone who shares their experiences and what works for them. Thanks for the opportunity.

I have mvp with mild regurtitation. I was diagnosed about 2 years ago. I was having a panic attack, and palpitations constantly. My regular doctor did an EKG, and then recommended that I see a cardiologist. I was diagnosed. It all makes sense bc I was never a big drinker, I had to force myself, always had a racing heart, depressed most of my life, panic attacks, irregular bowels. The list goes on as does every other mvper. Its terrible bc its not just the heart, it affects so much more than that. The anxiety, the depression, the irritable bowels, the hemmerhoids, the constipation, the list goes on. It affects every area. I dont exercise, and I need to bc I know it will help. I am working parttime instead of full-time. I cant move up in my job. The panic attacks send me to the ER, and so do the migraines. I just never want to experience those again, and I will be happier. I thought literally I was going to die 2 weeks ago, it was so awful, and so bad. Of course, the heart is fine, and we get sent home. It could be worse. :)

I have mitral valve prolapse. A lot of times, I have palpitations, and other symptoms. Sometimes.. my body just won't wake up unless I sleep 10-12 hours in a row. I can't help it. I hate it. I am not lazy, I just physically am unable to go. Another thing I get a lot is this feeling like there is a piece of broken glass that is twisting inside my heart. Or that general area.. as I can't see it. But I'd describe it as .. inside my heart. And it physically hurts. This gives me anxiety, maybe even panic... and makes me think that I am going to die. But so far, I don't die. (so when it happens.. I just pretend that its normal. And the part that sucks the most is.. I don't want to tell anyone..because I don't want to alarm them. They don't have this problem, and they will never understand it. Waking up in the middle of the night with this pain. Or just outside, shoveling the driveway, or at a movie with friends. Who could possibly understand? It just hurts. And it feels like death is knocking (I just don't answer the door).. And that happens when I have palpitations. Is this normal? I never, ever, ever, ever even knew others or talked to others with Mitral Valve Prolapse.. so.. for me.. this is pretty cool. I am glad this site exists. Makes me feel a little less abnormal.

I have mitral valve prolapse, with minimal regurtitation, I went see a doctor because of these boring chest pain, in both sides, then I discovered the MVP .... that was a surprise ....... I think that my only symptom is chest pain ...... anybody else had it ??? what you do to minimize this boring symptom ???

I agree with those who say dehydration makes things worse! Also stressful situations, or anything else that causes an adrenaline surge.

I find having one cup of caffeinated tea a day makes it less likely that I'll have a panic attack if I accidentally drink something caffeinated; don't overdo though. Also knowing what a panic attack feels like in the early stages (I get crawly skin sensations) helps me stay calm enough to avoid escalating it. While I'm waiting for it to go away, it helps to be warm and to have something touching me, whether it's a heavy blanket or a hot shower. I find these attacks annoying, because they feel unpleasant and I have to keep reminding myself to stay calm until they pass, but they no longer turn into an hours' long freak-out.

I was diagnosed when I was 7 years old even though I have been going to cardiologists for years I have NEVER gotten a doctor, cardiologist or other to validate the fact that I do have other symptoms. I faint at least once a month, more in the winter, if i'm stress, dehydrated, or overheating. my blood pools in my feet and my lets get purple and splotchy if i stand for too long, and they feel very uncomfortable, and upon standing up i lose my vision at least for a few seconds and get dizzy around 85% of the time. along with losing my vision I get ringing in my ears. The worst part of this condition of me is the sheer lack of knowledge in the medical field, I've had doctors tell me that because i'm a female fainting's common, and i should work on being less hysterical.

I've always been told I had a mild mitral valve prolapse. Recently I went to a new cardiologist and the echocardiography showed no prolapse at all. The nurse said that this depends on the definition that is been given in different from different cardiologist, and that a mitral valve prolapse does not normally disappears.
I get angina episodes, mostly at rest and often with palpitations. They can last from a few minutes to a few days. I am now 37 and this causes me insomnia (I wake up every night at about 3-4 am). I also get pain in the left side of my body, from jaw to foot. I have never experienced anything like this until the age of 34.

I am 41 am a runner and a healthy eater. I have always had extreme cold hands and feet. They will go numb if I don't move them for a while. So moving them will help you. I do not take medications of any kind so when the Dr. told me he wanted to put me on a beta-blocker I said no. I have been running 3 miles, going outside and sitting in the sun for at least 10-15 min a day, and most importantly I have been practicing meditation. That has helped me more than anything. I would like to know how others of you feel about NOT taking medications.

stress is a huge trigger for me because it causes adrenal fatigue that makes my symptoms worse. I work very hard at keeping a positive attitude and have had to eliminate some people from my life that are negative and energy drainers.

If it helps, numbness is probably related to age. Muscles atrophy as you get older even if you do keep in shape. Both my husband and I get numbness if we overwork our muscles. It can also mean other things but you have to think in degrees of numbness and whether it stays or goes. Try to think what might cause it. When I mow the lawn or drive a car sometimes my fingers go numb. Walking with tight shoes and sometimes those cross trainers at the gym cause it, but it always goes away. When it stays all the times is probably a little more problematic. Lots of doctors don't listen. I have to educate myself a lot in order to get the care I should get.

Re: Numbness in limbs, fingers — I have told my doctors that my fingers and toes are numb, but it is like they are not listening. I have no insurance and have only been diagnosed with sympomatic MVP recently. Now I understand the only thing to do is to wait until I fall out in the floor before someone will listen and tell me it is serious. An I am only 46, eat well and no reason for this to be happening.

Re: Dehydration — when I'm dehydrated, I get very lightheaded and almost pass out when standing up

Re: Constipation — symptoms of constipation are fairly regular but i am able to control with herb called Isabgool

Re: Undiagnosed for a long time — I was diagonised of MVP or rather with a murmer at fairly young age of 18 yrs but it was confirmed as classic MVP after a decade.

Megan B.
Re: MSG — Hydrolyzed corn protein and Autolyzed yeast extract are also forms of MSG- Campbells soup states that they do not contain MSG but they do - they are just calling it something different people dont realize it yet.

Re: Dehydration — If I'm dehydrated, my palpitations get much worse!