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Mitral Valve Prolapse (836 members)

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I have mitral valve prolapse. A lot of times, I have palpitations, and other symptoms. Sometimes.. my body just won't wake up unless I sleep 10-12 hours in a row. I can't help it. I hate it. I am not lazy, I just physically am unable to go. Another thing I get a lot is this feeling like there is a piece of broken glass that is twisting inside my heart. Or that general area.. as I can't see it. But I'd describe it as .. inside my heart. And it physically hurts. This gives me anxiety, maybe even panic... and makes me think that I am going to die. But so far, I don't die. (so when it happens.. I just pretend that its normal. And the part that sucks the most is.. I don't want to tell anyone..because I don't want to alarm them. They don't have this problem, and they will never understand it. Waking up in the middle of the night with this pain. Or just outside, shoveling the driveway, or at a movie with friends. Who could possibly understand? It just hurts. And it feels like death is knocking (I just don't answer the door).. And that happens when I have palpitations. Is this normal? I never, ever, ever, ever even knew others or talked to others with Mitral Valve Prolapse.. so.. for me.. this is pretty cool. I am glad this site exists. Makes me feel a little less abnormal.

I have mitral valve prolapse, with minimal regurtitation, I went see a doctor because of these boring chest pain, in both sides, then I discovered the MVP .... that was a surprise ....... I think that my only symptom is chest pain ...... anybody else had it ??? what you do to minimize this boring symptom ???

I agree with those who say dehydration makes things worse! Also stressful situations, or anything else that causes an adrenaline surge.

I find having one cup of caffeinated tea a day makes it less likely that I'll have a panic attack if I accidentally drink something caffeinated; don't overdo though. Also knowing what a panic attack feels like in the early stages (I get crawly skin sensations) helps me stay calm enough to avoid escalating it. While I'm waiting for it to go away, it helps to be warm and to have something touching me, whether it's a heavy blanket or a hot shower. I find these attacks annoying, because they feel unpleasant and I have to keep reminding myself to stay calm until they pass, but they no longer turn into an hours' long freak-out.

Kai
I was diagnosed when I was 7 years old even though I have been going to cardiologists for years I have NEVER gotten a doctor, cardiologist or other to validate the fact that I do have other symptoms. I faint at least once a month, more in the winter, if i'm stress, dehydrated, or overheating. my blood pools in my feet and my lets get purple and splotchy if i stand for too long, and they feel very uncomfortable, and upon standing up i lose my vision at least for a few seconds and get dizzy around 85% of the time. along with losing my vision I get ringing in my ears. The worst part of this condition of me is the sheer lack of knowledge in the medical field, I've had doctors tell me that because i'm a female fainting's common, and i should work on being less hysterical.

I've always been told I had a mild mitral valve prolapse. Recently I went to a new cardiologist and the echocardiography showed no prolapse at all. The nurse said that this depends on the definition that is been given in different from different cardiologist, and that a mitral valve prolapse does not normally disappears.
I get angina episodes, mostly at rest and often with palpitations. They can last from a few minutes to a few days. I am now 37 and this causes me insomnia (I wake up every night at about 3-4 am). I also get pain in the left side of my body, from jaw to foot. I have never experienced anything like this until the age of 34.

I am 41 am a runner and a healthy eater. I have always had extreme cold hands and feet. They will go numb if I don't move them for a while. So moving them will help you. I do not take medications of any kind so when the Dr. told me he wanted to put me on a beta-blocker I said no. I have been running 3 miles, going outside and sitting in the sun for at least 10-15 min a day, and most importantly I have been practicing meditation. That has helped me more than anything. I would like to know how others of you feel about NOT taking medications.

stress is a huge trigger for me because it causes adrenal fatigue that makes my symptoms worse. I work very hard at keeping a positive attitude and have had to eliminate some people from my life that are negative and energy drainers.

skimclad
If it helps, numbness is probably related to age. Muscles atrophy as you get older even if you do keep in shape. Both my husband and I get numbness if we overwork our muscles. It can also mean other things but you have to think in degrees of numbness and whether it stays or goes. Try to think what might cause it. When I mow the lawn or drive a car sometimes my fingers go numb. Walking with tight shoes and sometimes those cross trainers at the gym cause it, but it always goes away. When it stays all the times is probably a little more problematic. Lots of doctors don't listen. I have to educate myself a lot in order to get the care I should get.

Re: Numbness in limbs, fingers — I have told my doctors that my fingers and toes are numb, but it is like they are not listening. I have no insurance and have only been diagnosed with sympomatic MVP recently. Now I understand the only thing to do is to wait until I fall out in the floor before someone will listen and tell me it is serious. An I am only 46, eat well and no reason for this to be happening.

rev_jeff
Re: Dehydration — when I'm dehydrated, I get very lightheaded and almost pass out when standing up

josh
Re: Constipation — symptoms of constipation are fairly regular but i am able to control with herb called Isabgool

josh
Re: Undiagnosed for a long time — I was diagonised of MVP or rather with a murmer at fairly young age of 18 yrs but it was confirmed as classic MVP after a decade.

Megan B.
Re: MSG — Hydrolyzed corn protein and Autolyzed yeast extract are also forms of MSG- Campbells soup states that they do not contain MSG but they do - they are just calling it something different people dont realize it yet.

dreda
Re: Dehydration — If I'm dehydrated, my palpitations get much worse!