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Neurological Problems And Chronic Pain (2,507 members)

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I have CRPS and have tried a number of treatments over the years. Some, like nerve blocks, worked great but the results were temporary and others worked long term but with mediocre results. I am doing pretty well now thank 2 things. First is calmare treatments. I had terrific results with this. After treatment (10 sessions), I had no pain for months. For many people, the pain stays away or only comes back a little. Unfortunately for me the pain did come back to full levels, but for 1 full year I was in little to no pain. The second thing that has helped me is the neurolumen. This is a tens unit with lasers and LEDs. I went to a "meet and treat" session where I got to try it out for free. This was on a really bad day for me. I almost didn't go because the pain was so bad I didn't want to move. My mom finally convinced me to go and I am so glad she did. They ran the unit 3 times for me (each cycle is 30 minutes). This was on a Wednesday early afternoon. I had no pain at all again until Saturday night. I bought one of own and have been using it for the last 3 years and have had amazing results. I have been able to cut my meds down by more than half and gotten off of some altogether. I am able to do so much more than I could before and finally have a life again. These 2 treatments have helped me immensely. I am so glad I found them, especially considering I was getting ready to have a spinal cord implant when I decided to try these first.

I had micro vascular decompression surgery in 2008 that resulted in Anesthesia Dolorosa that is virtually impossible to fix.

For muscle or bone pains and cramps the best thing for me to use a combination of acetaminophen and oxazepam. Important to note is that every other benzodiazepine causes severe muscle weakness.

Yoga stretching helped a lot. It was not a quick treatment, as it took months of gentle, persistent effert to make a difference.

I was in a car accident, a woman hit us two weeks after I had surgery on my neck for disk and neurological issues. The wreck resulted in a TBI, and surgery needed on all four limbs. Also, resulted in PTSD, and Fibromyalgia, Axiety Attacks, Nightmares, Depression. I'd been on Neurontin for the "electricity" for quite some time. I had to teach myself to write and type again. And Verbally expressing myself is still quite hard unless I am familiar with you.

My Doctor said there had been great results with Adderall and I was hesitate to take it due to it's nature. But I did. It was like Day and Night. If I take the Adderall I can think, code, write webpages again, I would encorage anyone with the above issues, especially someone with tbi and/or ptsd/Fibromyalgia to inquire about this medication. It is the difference of me being a functioning adult and *not* I couldn't even be left alone before being on this(due to short memory) , now I have no problems being alone.
So personally I am on
1500mg of Neurontin
40-45mg of Adderall
120mg of Cymbalta
30mg of Buspirone

I had been on everything except the Adderall for a year with virtually not allot of physical progress and hurt/slept all the time. Couldn't function, folding laundry was difficult.

Adding the Adderall Just changed my life. I'm back to doing things I used to do before the accident as a high level functioning adult.

For neuropathy: 300 mg lyrica (2x), 300 mg lamictal(3x).

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I've had Parkinson's for 7 1/2 years. LDN has been a life-saver! I've only been on 3mg/day for 3 days and already I'm walking faster with almost no shuffling or foot dragging and just feeling fantastic! I'm on 1/2 sinemet 3x/day and I'm going to cut down on that because I don't like the side effects and I think the LDN is helping me more. I had a little trouble sleeping the first two nights on LDN but last night I slept like a rock!

karl
Idiopathic non-diabetic, peripheral neuropathy. After receiving a coronary stent in 2002 I was prescribed Lipitor. Within a few months I noticed numbness and tingling in my feet. My doctor decided to we would "watch" it. Within a year, the symptoms had moved up my legs (symmetrically) and was now present in my hands.

At two years in, I had a mylogram that verified the physical basis of my complaint. The symptom then extended symmetrically as far as my knees and elbows. I was taking a lot of neurontin to manage the aggravation, was still taking Lipitor.

At about 3 years in I found material on the www that seemed to connect Lipitor with IPN. I decided to stop all statin drugs. Three months post cessation I noticed a decrease in symptom intensity and against my cardioligist's advice decided to remain "unprotected" from the perils of cholesterol.

Things remained in stasis - p/n in extremities, pain manageable with neurontin and nortriptilene.

Next, 5 years in, a new cardiologist convinced me that another statin drug, Effexor, in tiny doses would manage my cholesterol. Within two months of starting it the p/n symptoms spread with amazing speed into my face and scalp.

And so, seven years in, am cursed with a constant facial, cranial "sunburn", and numbed extremities. Am now taking Lyrica (a very dangerous psychoactive drug, btw) / Nortriptilene to partially manage the pain. Am interested in exploring anything that might stop the disease process which, as I understand it is my auto-immune system (macrophage?) assaulting on my "long nerves".

I look forward to hearing about LDN's possible application to my situation.

Thanks, Karl







Re: Low Dose Naltrexone (LDN) — I began taking LDN prior to the MS diagnosis. Have been taking 3.0 mg; now titrating up to 4.5 mg due to diagnosis. I felt better right away, more energy, great sleep. No side effects other than vivid dreams. I choose to use LDN and not the mainstream MS drugs, at least for awhile to see if the MS progresses. My case is confusing because I also have Parkinsonism as a result of 3 car accidents and other body/brain traumas. I started using the LDN for the Parkinsonism symptoms.

Re: Chronic pain — neck down right arm and rt hand - have had 3 whiplashes, 2 very serious - have been diagnosed recently with MS and Parkinsonism - taking LDN and supps, bio-identical hormones, and eat whole food nutrient dense diet

Re: Traumatic Injury — 1 comment:

nspinal trauma at sea, after hitting a rock. quadriplegic state, returning the movements right. 10days after hospital treatment to decrease the EDMAn Surgery was performed for decompression of the spinal cord. 6 today after 6 years I have difficultiesn in cold-temperature movements are trappedn -I have a lot of heat in the legsn -I do not have the necessary balancen treatmentn lexapro 1-yearn Lioresal qundo-neededn -neurontrinn -pooln -physiotherapyn Current situationn -normal life, using neurotrin [but with reactions such as drowsiness, mild urinary blockade.nnnnnnnnspinal trauma at sea, after hitting a rock. quadriplegic state, returning the movements right. 10days after hospital treatment to decrease the EDMAn Surgery was performed for decompression of the spinal cord. 6 today after 6 years I have difficultiesn in cold-temperature movements are trappedn -I have a lot of heat in the legsn -I do not have the necessary balancen treatmentn lexapro 1-yearn Lioresal qundo-neededn -neurontrinn -pooln -physiotherapyn Current situationn -normal life, using neurotrin [but with reactions such as drowsiness, mild urinary blockade.nn0.nnnn.nnPosted by: Anonymous

Re: Traumatic Injury —
spinal trauma at sea, after hitting a rock. quadriplegic state, returning the movements right. 10days after hospital treatment to decrease the EDMA
Surgery was performed for decompression of the spinal cord. 6 today after 6 years I have difficulties
in cold-temperature movements are trapped
-I have a lot of heat in the legs
-I do not have the necessary balance
treatment
lexapro 1-year
Lioresal qundo-needed
-neurontrin
-pool
-physiotherapy
Current situation
-normal life, using neurotrin [but with reactions such as drowsiness, mild urinary blockade.







spinal trauma at sea, after hitting a rock. quadriplegic state, returning the movements right. 10days after hospital treatment to decrease the EDMA
Surgery was performed for decompression of the spinal cord. 6 today after 6 years I have difficulties
in cold-temperature movements are trapped
-I have a lot of heat in the legs
-I do not have the necessary balance
treatment
lexapro 1-year
Lioresal qundo-needed
-neurontrin
-pool
-physiotherapy
Current situation
-normal life, using neurotrin [but with reactions such as drowsiness, mild urinary blockade.

0.



.

Re: Tramadol — It Worked........

Re: Leg and foot pain — Constant leg cramping

Re: Weakness — causes fatigue and pain in joints

Re: Fatigue — fatigue from the MS, in addition to the difficulty walking causing ftigue

Re: Chronic pain — aching joints from poor gait and falls, arthritis, spasms

Re: Balance problems — Stumble, walk into things,fall over

Re: Lower extremity numbness / tingling — Constant numbness and weakness in toes,feet,legs and fingers

Re: Weakness — Muscle wastage due to MS, joints tire unable to walk, balance poor

Re: Fatigue — MS related fatigue, drained energy unable to walk at times, general concentration levels low

Re: Chronic pain — joint pain, and muscle pain

Re: Lower extremity numbness / tingling — Constant numbness in lower legs

see_a_knight
Re: Dizziness — Two events of vertigo, one lasting two months the second lasting three months.