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Neurological Problems And Chronic Pain (1,746 members)

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For muscle or bone pains and cramps the best thing for me to use a combination of acetaminophen and oxazepam. Important to note is that every other benzodiazepine causes severe muscle weakness.

Yoga stretching helped a lot. It was not a quick treatment, as it took months of gentle, persistent effert to make a difference.

I was in a car accident, a woman hit us two weeks after I had surgery on my neck for disk and neurological issues. The wreck resulted in a TBI, and surgery needed on all four limbs. Also, resulted in PTSD, and Fibromyalgia, Axiety Attacks, Nightmares, Depression. I'd been on Neurontin for the "electricity" for quite some time. I had to teach myself to write and type again. And Verbally expressing myself is still quite hard unless I am familiar with you.

My Doctor said there had been great results with Adderall and I was hesitate to take it due to it's nature. But I did. It was like Day and Night. If I take the Adderall I can think, code, write webpages again, I would encorage anyone with the above issues, especially someone with tbi and/or ptsd/Fibromyalgia to inquire about this medication. It is the difference of me being a functioning adult and *not* I couldn't even be left alone before being on this(due to short memory) , now I have no problems being alone.
So personally I am on
1500mg of Neurontin
40-45mg of Adderall
120mg of Cymbalta
30mg of Buspirone

I had been on everything except the Adderall for a year with virtually not allot of physical progress and hurt/slept all the time. Couldn't function, folding laundry was difficult.

Adding the Adderall Just changed my life. I'm back to doing things I used to do before the accident as a high level functioning adult.

For neuropathy: 300 mg lyrica (2x), 300 mg lamictal(3x).

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I've had Parkinson's for 7 1/2 years. LDN has been a life-saver! I've only been on 3mg/day for 3 days and already I'm walking faster with almost no shuffling or foot dragging and just feeling fantastic! I'm on 1/2 sinemet 3x/day and I'm going to cut down on that because I don't like the side effects and I think the LDN is helping me more. I had a little trouble sleeping the first two nights on LDN but last night I slept like a rock!

karl
Idiopathic non-diabetic, peripheral neuropathy. After receiving a coronary stent in 2002 I was prescribed Lipitor. Within a few months I noticed numbness and tingling in my feet. My doctor decided to we would "watch" it. Within a year, the symptoms had moved up my legs (symmetrically) and was now present in my hands.

At two years in, I had a mylogram that verified the physical basis of my complaint. The symptom then extended symmetrically as far as my knees and elbows. I was taking a lot of neurontin to manage the aggravation, was still taking Lipitor.

At about 3 years in I found material on the www that seemed to connect Lipitor with IPN. I decided to stop all statin drugs. Three months post cessation I noticed a decrease in symptom intensity and against my cardioligist's advice decided to remain "unprotected" from the perils of cholesterol.

Things remained in stasis - p/n in extremities, pain manageable with neurontin and nortriptilene.

Next, 5 years in, a new cardiologist convinced me that another statin drug, Effexor, in tiny doses would manage my cholesterol. Within two months of starting it the p/n symptoms spread with amazing speed into my face and scalp.

And so, seven years in, am cursed with a constant facial, cranial "sunburn", and numbed extremities. Am now taking Lyrica (a very dangerous psychoactive drug, btw) / Nortriptilene to partially manage the pain. Am interested in exploring anything that might stop the disease process which, as I understand it is my auto-immune system (macrophage?) assaulting on my "long nerves".

I look forward to hearing about LDN's possible application to my situation.

Thanks, Karl







Re: Low Dose Naltrexone (LDN) — I began taking LDN prior to the MS diagnosis. Have been taking 3.0 mg; now titrating up to 4.5 mg due to diagnosis. I felt better right away, more energy, great sleep. No side effects other than vivid dreams. I choose to use LDN and not the mainstream MS drugs, at least for awhile to see if the MS progresses. My case is confusing because I also have Parkinsonism as a result of 3 car accidents and other body/brain traumas. I started using the LDN for the Parkinsonism symptoms.

Re: Chronic pain — neck down right arm and rt hand - have had 3 whiplashes, 2 very serious - have been diagnosed recently with MS and Parkinsonism - taking LDN and supps, bio-identical hormones, and eat whole food nutrient dense diet

Re: Traumatic Injury — 1 comment:

nspinal trauma at sea, after hitting a rock. quadriplegic state, returning the movements right. 10days after hospital treatment to decrease the EDMAn Surgery was performed for decompression of the spinal cord. 6 today after 6 years I have difficultiesn in cold-temperature movements are trappedn -I have a lot of heat in the legsn -I do not have the necessary balancen treatmentn lexapro 1-yearn Lioresal qundo-neededn -neurontrinn -pooln -physiotherapyn Current situationn -normal life, using neurotrin [but with reactions such as drowsiness, mild urinary blockade.nnnnnnnnspinal trauma at sea, after hitting a rock. quadriplegic state, returning the movements right. 10days after hospital treatment to decrease the EDMAn Surgery was performed for decompression of the spinal cord. 6 today after 6 years I have difficultiesn in cold-temperature movements are trappedn -I have a lot of heat in the legsn -I do not have the necessary balancen treatmentn lexapro 1-yearn Lioresal qundo-neededn -neurontrinn -pooln -physiotherapyn Current situationn -normal life, using neurotrin [but with reactions such as drowsiness, mild urinary blockade.nn0.nnnn.nnPosted by: Anonymous

Re: Traumatic Injury —
spinal trauma at sea, after hitting a rock. quadriplegic state, returning the movements right. 10days after hospital treatment to decrease the EDMA
Surgery was performed for decompression of the spinal cord. 6 today after 6 years I have difficulties
in cold-temperature movements are trapped
-I have a lot of heat in the legs
-I do not have the necessary balance
treatment
lexapro 1-year
Lioresal qundo-needed
-neurontrin
-pool
-physiotherapy
Current situation
-normal life, using neurotrin [but with reactions such as drowsiness, mild urinary blockade.







spinal trauma at sea, after hitting a rock. quadriplegic state, returning the movements right. 10days after hospital treatment to decrease the EDMA
Surgery was performed for decompression of the spinal cord. 6 today after 6 years I have difficulties
in cold-temperature movements are trapped
-I have a lot of heat in the legs
-I do not have the necessary balance
treatment
lexapro 1-year
Lioresal qundo-needed
-neurontrin
-pool
-physiotherapy
Current situation
-normal life, using neurotrin [but with reactions such as drowsiness, mild urinary blockade.

0.



.

Re: Tramadol — It Worked........

Re: Leg and foot pain — Constant leg cramping

Re: Weakness — causes fatigue and pain in joints

Re: Fatigue — fatigue from the MS, in addition to the difficulty walking causing ftigue

Re: Chronic pain — aching joints from poor gait and falls, arthritis, spasms

Re: Balance problems — Stumble, walk into things,fall over

Re: Lower extremity numbness / tingling — Constant numbness and weakness in toes,feet,legs and fingers

Re: Weakness — Muscle wastage due to MS, joints tire unable to walk, balance poor

Re: Fatigue — MS related fatigue, drained energy unable to walk at times, general concentration levels low

Re: Chronic pain — joint pain, and muscle pain

Re: Lower extremity numbness / tingling — Constant numbness in lower legs

see_a_knight
Re: Dizziness — Two events of vertigo, one lasting two months the second lasting three months.