Gabapentin may be starting to help. I'm now at 900 mg/day and moving up to 1800 mg/day. Nerve block with Kenalog did not help.
Re: Pain with sitting — It is very painful to sit on a hard surface. Also for extended periods.
Re: Pain with sitting — It is very painful to sit on a hard surface. Also for extended periods.
no.help.in.atlanta Re: Injury — childbirth
no.help.in.atlanta Re: Physical therapy — PT makes the most improvement, but it only lasts for two to three days. At least I can get relief for a short period of time.
no.help.in.atlanta Re: Seating cushions — I never leave home without my little pillow...embarrassing though it may be.
no.help.in.atlanta Re: Standing and walking most of the day — The only way I can avoid the pain is by standing. Walking hurts as much as sitting.
no.help.in.atlanta Re: Inner thigh pain — Have recently received PT for connective tissue release and have since had less severe pain.
no.help.in.atlanta Re: Difficulty with bowel movements — After a year and a half of vulvodynia symptoms, I began having this symptom along with urinary retention.
no.help.in.atlanta Re: Tailbone pain — My tailbone pain began after the vulvodynia began. I gained relief from removal of some scar tissue following hysterectomy. The vulvodynia returned about three months after the scar tissue removal but the tailbone pain has returned only once and then only for a day or so.
milaka Re: Burning in vulvar area — This burning is almost untolerable. It feels like a burning fire or some knives cutting my vulvar into pieces... A bad toothache is nothing compared to this pain.
milaka Re: Pain with sitting — I have pain while sitting down and even more after having getting up again.
Chinadoll Re: Gabapentin (Neurontin) — it works, but when you have a flare up, caused by exercise,or who knows what causes them, you have to take the drug up very high to 2700 - 3600mgs to get relief. I feel then it makes me very foggy and difficult to concentrate; attention span is lessened. more word searching. It does work very well to calm things down eventually. But it takes a long time. Maybe 6 weeks or so.
Chinadoll Re: Pain in genitals — extreme clitoral pain - like a toothache pain in this area
Gabapentin may be starting to help. I'm now at 900 mg/day and moving up to 1800 mg/day. Nerve block with Kenalog did not help.
Re: Pain with sitting — It is very painful to sit on a hard surface. Also for extended periods.
Re: Pain with sitting — It is very painful to sit on a hard surface. Also for extended periods.
no.help.in.atlanta
Re: Injury — childbirth
no.help.in.atlanta
Re: Physical therapy — PT makes the most improvement, but it only lasts for two to three days. At least I can get relief for a short period of time.
no.help.in.atlanta
Re: Seating cushions — I never leave home without my little pillow...embarrassing though it may be.
no.help.in.atlanta
Re: Standing and walking most of the day — The only way I can avoid the pain is by standing. Walking hurts as much as sitting.
no.help.in.atlanta
Re: Inner thigh pain — Have recently received PT for connective tissue release and have since had less severe pain.
no.help.in.atlanta
Re: Difficulty with bowel movements — After a year and a half of vulvodynia symptoms, I began having this symptom along with urinary retention.
no.help.in.atlanta
Re: Tailbone pain — My tailbone pain began after the vulvodynia began. I gained relief from removal of some scar tissue following hysterectomy. The vulvodynia returned about three months after the scar tissue removal but the tailbone pain has returned only once and then only for a day or so.
milaka
Re: Burning in vulvar area — This burning is almost untolerable. It feels like a burning fire or some knives cutting my vulvar into pieces... A bad toothache is nothing compared to this pain.
milaka
Re: Pain with sitting — I have pain while sitting down and even more after having getting up again.
Chinadoll
Re: Gabapentin (Neurontin) — it works, but when you have a flare up, caused by exercise,or who knows what causes them, you have to take the drug up very high to 2700 - 3600mgs to get relief. I feel then it makes me very foggy and difficult to concentrate; attention span is lessened. more word searching. It does work very well to calm things down eventually. But it takes a long time. Maybe 6 weeks or so.
Chinadoll
Re: Pain in genitals — extreme clitoral pain - like a toothache pain in this area
Chinadoll
Re: Muscle spasms — Pelvic Floor muscle spasms
Chinadoll
Re: SI joint dysfunction — can you explain SI joint pain?