I have on MTX cimzia. It has not worked. I just recieved LDN. MY BIG QUESTION IS HOW MUCH SHOULD i START OUT ON. i HAVE HAD PEOPLE TELL ME 1.5 TO 4.5.i HAVE BEEN UNUABLE TO DO ANYTHINY FOR OVER A MONTH. i PRAY THIS WILL BE THE DRUG FOR ME....IF Anyone has any advice it would be great. Kym H
Alberto I have just started LDN. It would be great to hear more about other's experience with LDN. How long to notice a difference? side effects? Etc.
I took my first dose (4.5mg) yesterday (12/2/11). It was incredible. There were times the pain was so low that I though I was cured! I could not sleep at all (maybe anxiety!). My RA is very aggressive. I am on MTX and Humira. The pain is manageable (say a 4 on a 10 scale). Hopefully LDN will do the final trick..
JlJack is on LDN since April 2009. How long did he take it before it began to work. I have taken it for about 3 weeks.
Re: Limbrel — no side effects and comes from plant material. helping reduce hand stiffness and pain in the morning so far. haven't been on it very long.
dede Re: Prednisone — I was crippled with joint pain, diagnosed as "palindromic rheumatism" - finally put on 10mg of prednisone, which provided a miracle of relief. I felt almost normal again after 3 mos of debilitating agony. now I'm down to 7 mg and can't seem to get any lower. when I go to 6.5 I start to hurt all over again. my next hope is to try LDN, low dose naltroxen - I;ve heard it's wonderful for immune disorders.
jljack Re: Joint pain — Started in my feet, now in most major joints and in my hands. Nearly constant pain, mostly relieved by ibuprophen. Swelling occurs about 50% of the time. Also some relief from soaking in warm water.
Re: Low Dose Naltrexone (LDN) — I now have no RA symptoms having started low dose naltrexone in April 2009
Bettyd Re: Methotrexate (Rheumatrex, Trexall) — After one dose, my hands and legs were remarkably worse. I was unable to go to work or tie my shoes.
Bettyd Re: Enbrel (Etanercept) — I developed a severe itchy rash that kept coming back.
buzzy12345 Re: Methotrexate (Rheumatrex, Trexall) — This medication can trigger something in your brain to turn on a vomit response. Once you hit that point, you cannot take this drug any longer. The trick is to keep the lowest possible dosage that works for your body.
Source: a rheumatologist at the National Juvenile Arthritis Conference 2009 - Houston, TX
shimoyake Re: Prednisone — worked but very severe side-effects.
varga Re: Leflunomide (Arava) — Do not think that this did much for my joints, made me loose a little weight.
varga Re: Cortisol — Gave me more pain after the injection, but helped calm the swelling down substantially for a while.
varga Re: Minocycline (Dynacin, Minocin) — Did show some improvement, but not enough. Also cleared up acne and gave me a mild sun activated rash.
varga Re: Enbrel (Etanercept) — Did show some improvement, but not enough.
varga Re: Adalimumab (Humira) — Could tell it was doing something, because a few days before I took it my symptoms would get a little worse. Did not prevent flares or do much overall. Also gave me tingling in my arms, legs, hands and feet- which has been going away after I stopped taking it.
varga Re: Removal of the joint lining (Synovectomy) — Knee was a lot better after surgery, but eventually the joint swelled up again.
kristen Re: Cortisol — Though claimed for its wonderfulness, the injection didn't help the pain of my flare up at all.
kristen Re: Exercise — Along with my healthy diet, I was also exercised vigorously about 4 times a week. Since my problem area is my wrists, I could easily avoid using them for cardio activity. However, when my full body flare occurred, I had a hard enough time walking down stairs or even sitting up for awhile. So I was incapable of performing any type of exercise due to the pain. This flare up occurred after I had been exercising regularly for 6 months so I feel that the exercising in no way prevented (or caused) the flareup. For me, exercising seems coincidental for helping my RA symptoms.
kristen Re: Enbrel (Etanercept) — I love Enbrel. Though better than iv infusions, the weekly shots are difficult for me, and I have yet been capable of administering them myself. I have taken MANY nsaids over the years, which never seemed to help at all. I'm also on methotrexate, which helped more than nsaids, but I still endured minor pain with simple tasks (ex. turning ignition of car, writing, using a mouse). Within one week of using Enbrel I was capable of performing simple tasks with ease, and within a couple of weeks, I was able to preform even more difficult straining tasks without wrist pain. I have been living pain free and "normal" for 4 months now.
kristen Re: Protect joints — I wore wrists splints for several months. While wearing the splints kept me from moving my wrists to cause pain, the immobility would cause painful stiffness. However, if avoiding painful activities (i.e. jar opening, heavy lifting) is considered protecting my joints, then yes, that obviously helps.
kristen Re: Heat — may not always relieve pain, but heat temporarily makes my wrists feel better
I have on MTX cimzia. It has not worked. I just recieved LDN. MY BIG QUESTION IS HOW MUCH SHOULD i START OUT ON. i HAVE HAD PEOPLE TELL ME 1.5 TO 4.5.i HAVE BEEN UNUABLE TO DO ANYTHINY FOR OVER A MONTH. i PRAY THIS WILL BE THE DRUG FOR ME....IF Anyone has any advice it would be great.
Kym H
Alberto
I have just started LDN. It would be great to hear more about other's experience with LDN. How long to notice a difference? side effects? Etc.
I took my first dose (4.5mg) yesterday (12/2/11). It was incredible. There were times the pain was so low that I though I was cured! I could not sleep at all (maybe anxiety!). My RA is very aggressive. I am on MTX and Humira. The pain is manageable (say a 4 on a 10 scale). Hopefully LDN will do the final trick..
JlJack is on LDN since April 2009. How long did he take it before it began to work. I have taken it for about 3 weeks.
Re: Limbrel — no side effects and comes from plant material. helping reduce hand stiffness and pain in the morning so far. haven't been on it very long.
dede
Re: Prednisone — I was crippled with joint pain, diagnosed as "palindromic rheumatism" - finally put on 10mg of prednisone, which provided a miracle of relief. I felt almost normal again after 3 mos of debilitating agony. now I'm down to 7 mg and can't seem to get any lower. when I go to 6.5 I start to hurt all over again. my next hope is to try LDN, low dose naltroxen - I;ve heard it's wonderful for immune disorders.
jljack
Re: Joint pain — Started in my feet, now in most major joints and in my hands. Nearly constant pain, mostly relieved by ibuprophen. Swelling occurs about 50% of the time. Also some relief from soaking in warm water.
Re: Low Dose Naltrexone (LDN) — I now have no RA symptoms having started low dose naltrexone in April 2009
Bettyd
Re: Methotrexate (Rheumatrex, Trexall) — After one dose, my hands and legs were remarkably worse. I was unable to go to work or tie my shoes.
Bettyd
Re: Enbrel (Etanercept) — I developed a severe itchy rash that kept coming back.
buzzy12345
Re: Methotrexate (Rheumatrex, Trexall) — This medication can trigger something in your brain to turn on a vomit response. Once you hit that point, you cannot take this drug any longer. The trick is to keep the lowest possible dosage that works for your body. Source: a rheumatologist at the National Juvenile Arthritis Conference 2009 - Houston, TX
shimoyake
Re: Prednisone — worked but very severe side-effects.
varga
Re: Leflunomide (Arava) — Do not think that this did much for my joints, made me loose a little weight.
varga
Re: Cortisol — Gave me more pain after the injection, but helped calm the swelling down substantially for a while.
varga
Re: Minocycline (Dynacin, Minocin) — Did show some improvement, but not enough. Also cleared up acne and gave me a mild sun activated rash.
varga
Re: Enbrel (Etanercept) — Did show some improvement, but not enough.
varga
Re: Adalimumab (Humira) — Could tell it was doing something, because a few days before I took it my symptoms would get a little worse. Did not prevent flares or do much overall. Also gave me tingling in my arms, legs, hands and feet- which has been going away after I stopped taking it.
varga
Re: Removal of the joint lining (Synovectomy) — Knee was a lot better after surgery, but eventually the joint swelled up again.
kristen
Re: Cortisol — Though claimed for its wonderfulness, the injection didn't help the pain of my flare up at all.
kristen
Re: Exercise — Along with my healthy diet, I was also exercised vigorously about 4 times a week. Since my problem area is my wrists, I could easily avoid using them for cardio activity. However, when my full body flare occurred, I had a hard enough time walking down stairs or even sitting up for awhile. So I was incapable of performing any type of exercise due to the pain. This flare up occurred after I had been exercising regularly for 6 months so I feel that the exercising in no way prevented (or caused) the flareup. For me, exercising seems coincidental for helping my RA symptoms.
kristen
Re: Enbrel (Etanercept) — I love Enbrel. Though better than iv infusions, the weekly shots are difficult for me, and I have yet been capable of administering them myself. I have taken MANY nsaids over the years, which never seemed to help at all. I'm also on methotrexate, which helped more than nsaids, but I still endured minor pain with simple tasks (ex. turning ignition of car, writing, using a mouse). Within one week of using Enbrel I was capable of performing simple tasks with ease, and within a couple of weeks, I was able to preform even more difficult straining tasks without wrist pain. I have been living pain free and "normal" for 4 months now.
kristen
Re: Protect joints — I wore wrists splints for several months. While wearing the splints kept me from moving my wrists to cause pain, the immobility would cause painful stiffness. However, if avoiding painful activities (i.e. jar opening, heavy lifting) is considered protecting my joints, then yes, that obviously helps.
kristen
Re: Heat — may not always relieve pain, but heat temporarily makes my wrists feel better