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How I am controlling my Seb Derm.

Having suffered with Seb Derm for the last 5 years I am finally controlling it (not curing it - i don't believe there is a proper permanent cure). I'll tell you first and then explain, as I hate reading through a long story to find its something I've tried already and hasn't worked. So, here it is:

DO NOTHING, USE WATER AND NOTHING ELSE

I have tried everything under the sun, fuelled mainly by advice I read on the internet. Everyone is trying to help each other and that's great, but the amount of different 'cures' is half the problem. I'd try a recommended moisturiser, which would make my face too oily, I'd use a particular shampoo (head and shoulders) because of the zinc content. Astounding results for 6 months and then boom! Horrible greasy/dry skin, acne everywhere. Quick! Use some sort of drying cleanser.....ahh its all red and angry! etc etc.

Whilst all this is happening your skin is going crazy trying to rebalance, hence greasy, spotty and red one minute, dry, red and flaking the next.

The problem is, something goes wrong, you try and fix it, something else goes wrong because of this and you try and fix that. You're not letting the skin fix itself. Ok here are some capital letters for emphasis (not shouting).

LET YOUR SKIN DO ITS WORST

It might take a week, it might take a month of looking and feeling awful. But every day, wash your face with cold water once in the morning and once in the evening (or warm water if you're having a shower, I shower every other day). If you're anything like me you wash your skin, feel that drying sensation, panic and reach for the moisturiser. Don't, let it dry out, no matter how bad it gets just leave it.

After a day or two of this, your skin will freak out and produce tonnes of oil. Don't chicken out and put something drying on it, or wash it repeatedly. Again, just let it do its worst, be brave. You'll get spots and a lot of redness but it will pass in a few weeks. You just have to take the hit.

Eventually the oil will subside and the drying after washing will calm down and your skin will be a lot better. Not amazing, but it will feel better, look better and won't be 'out of control' anymore. The process also gives the control back to the skin and not you, removing a lot of the anxiety. If it gets bad again, you do nothing and let it return to normal.

To do this you'll need to have some serious self confidence. Because you will look awful for a little while. But it's worth it have skin that feels like it knows what it's doing, and to not have to slap an endless parade of products on your face while looking in the mirror thinking "if i change my moisturiser, or eat no sugar, or rotate my shampoo it'll get better". No more anxiety.

All these products that sort of help are actually making it worse by confusing your skin and stopping its natural ability to look ok. I am starting to think that Seb Derm is something that some people are more prone to than others due to various genetic and dietary issues however the real killer, the thing that aggravates it or brings it on in the first place is the insane s**t we put on our faces. People lived for thousands of years without it, your skin does not need it, it is sold to as the cure to make the cosmetic/pharmaceutical industries a lot of money.

Try doing nothing. If it doesn't work at least you'll know.

NIH RAW HONEY TREATMENT WORKED!

After suffering from Seb Derm for 17 years, it had gotten so bad I wasn't going outside much, avoiding social contact, etc. I was pretty miserable.

I have a background in science, so I very methodically had tried just about everything out there. I would grid off my face into sections and try different products to see which worked better than others, etc. Of course I got the classic steroid creams from dermatologists, and had the usual unsatisfactory results. I also tried neem oil, tea tree products, antifungals, scar gels, black soaps, tar shampoos... the list goes on and on.

I finally read about the NIH study regarding the raw honey. I did a fairly scientific test where I only did the honey treatments (3 hours a day, every other day, for 4 weeks) on one half of my face, leaving the other half with just my usual regimen (wash 2x day, lotion).

The results were totally astounding! The honey side of my face cleared up 90% in about 4 honey treatments. By the end of the trial, my Seb Derm, which I had been struggling with for almost 20 years, was completely absent from my face. I can't tell you how amazing a feeling this was - to look in the mirror and not cringe.

HOWEVER! A few notes of caution:

1) IT MUST BE RAW HONEY! I mistakenly tried non-raw honey first. The bottle said "raw" on it, but in the fine print the honey had been heated to 120 degrees. This ruins all the useful antifungals and antibacterials in the honey, basically just turning it into liquid sugar. This liquid sugar fed the yeast very nicely on my face, and actually made the Seb Derm much worse. Thankfully I later found some real raw honey, which worked just like the NIH study claimed it would.

2) COCONUT OIL WAS REALLY BAD! A few forums have had people posting that you should add coconut oil into the treatment, so I wanted to clarify how bad this was for me when I tried it. I'm not sure if it's just my skin type, or if the people claiming coconut oil is good don't actually have Seb Derm - but it was horrific on my face. It made the Seb Derm break out much, much worse, and I was in so much pain and itching red hell in the section I'd tried coconut oil treatments on, I can't even describe. The honey worked just fine by itself, and the NIH study says nothing about coconut oil at all. I would recommend trying the honey treatments just as the study says, and then if you want to experiment with coconut oil, try that after your seb term is gone and you're trying to figure out moisturizing options. As for me, I will never, ever put coconut oil on my skin again.

Anyway, that's it, just wanted to add my voice to forum and let sufferers know, the NIH study worked for me!

I made a spreadsheet of actions/changes to make to lifestyle in order to fully heal the skin.

I'm in my 6th week, it's working well.

Please find enclosed the link to the document on my google drive:

https://drive.google.com/file/d/0B84UxIJNWQxcQ3hKQlpKbFlSS2s/edit?usp=sharing

Good luck

sima
i'v had sd when i was around 17. im 26-7 now and have no problem about my skin,thanks to using sebbitar (QV) regularly. however i really suffer from my nose redness. after using cortisone and Clotrimazole they turned to be Telangiectasia.
for now im using senssibio h2o for cleaning make up and sebium refiner. i take a shower every day. its the best option for your hair loss. be careful! after that your body needs a moisturize lotion. when my dandruff vanished completely,my dr. suggested me to use some simple anti dandruff shampoos .
i'v heard about kelual ds and senssi bio ds. i will appreciate if somebody have any experience of using them. which of them are better?

sima
i have ds when i was 17. I'm 26-7 now and have used many kind of treatments. about 2 years ago my dr. recommended to use coal-tar. the best and beneficial

To say that SD gets me down is a massive understatement. I have suffered with it for more than twenty years and on a year by year basis it just gets worse - can't remember a time when my face looked normal. Everything I have tried either does nothing or makes it worse. There appear to be some people that do well with some treatments but would seem to be very hit and miss. Everything is worth a go but don't get your hopes up.
I would really like to offer some helpful advice but to be honest all I can say is get used to it.

I have Seb Derm on my face but I don't have an oily face.I also have Rosecea.I have not met anybody online w/ my type of Seb Derm.I would like to have a discussion on these topics w/ anybody who can relate.

This makes you smell like coal. :(

Re: Scaly, flaky skin — I met a dermatologist in Belgium who diagnosed my SD and suggested I try a face cream called Kelual DS, it works very, very well for me. They also make a shampoo of the same name, with which I've had mixed results.

As far as I know, those products are not available in North America. I tried to buy some in Canada and couldn't find it. You could try and order online and see if it works for you.

Apple cider vinegar also seems to have a beneficial effect. Funny enough, the Kelual cream has a vinegar scent to it....

Re: Scaly, flaky skin — To the first poster especially... have you tried natural remedies? I have heard countless people say that white distilled vinegar or apple cider vinegar applied topically to the affected areas are supposed to work very well at inhibiting the growth of fungus and yeast that contribute to SD. I have also heard people rave about using (diluted) 100% Tea Tree Oil to help combat SD, too. I would strongly suggest you try both. What do you have to lose? They're both incredibly cheap and can be bought at any grocery store or local health food store. I regularly use diluted white distilled vinegar (I got at the grocery store for under a dollar) on my scalp before every shampooing and it has completely cleared up my dry/flaky dandruff. P.S. Try raw manuka honey, too.

Re: T-Gel shampoo from Neutrogena (0.5% Coal Tar) — Daily use keeps rash to minimum

Re: Scaly, flaky skin — I believe Accutane gave me smilar conditions to you. After i stopped i got seb derm and then rosacea.

I have been going though heaps of treatments.

I know use elidel cream to control redness (see side effects). I use clonodine to help with blushing (50 micrograms 2x a day). I use cetpahil cleanser and moisturuser. I am starting Red Light Therapy with an LED RED UNIT i built myslef soon to reduce redness and sensitivity of face. I have cut back on alcohol and sugars. I also use raw honey to cleans once a week (leave on for 3 hrs and wash off).

All this has led to a managable condition.

Also hairloss in eyebrows controled with antifungal cream.

All the best.

I am posting regularly in the rosacea community chat site. Feel free to join. My name is WhyMe?

All the best

Dicky
Re: Demodex mites — Just a guess, based on web search. It is worst upon arising in the morning.

since2000
Re: Scaly, flaky skin — It all started for me in 2000 when I was a happy, outgoing 16 year old with everything to live for. I had a massive outbreak of what I first thought was teenage acne on the T Zone of the face. I went to the doctor first who gave me a variety of drugs that didnt work, and then went to the dermatologist in 2001, who diagnosed me with SD. She gave me all the usual stuff, the Nizoral, Ketoconazole, the steroid creams etc, but all they did was make the condition worse. In 2002 I was put on Accutane (the worst decision of my life) which at first cleared the pimples (they later came back when i ended the treatement) but dried my skin so there were thick layers of crust all over my face, while also making me look even more like a tomato. Anyhow, since 2003 and coming off Accutane I have gone from treatement to treatement, dermatologist to dermatoligist, trying to find a way of controlling this disease, but to no avail. My condition is basically as so: I have a big square on my forehead, and the butterfly region around the nose that is covered in SD redness, pimples, and worst of all dry, scaly crusts of skin. The worst believe it or not is the dry crusts, which are un-moisturisable (if there is such a word). For a while I found a solution for the dryness (not the redness) using some products from LindaSy, but just my luck, 2 months after finding it, the company closed down. I am now back to square one. The worst thing of all is that because of my constant dry crusts, it is impossible to cover up my condition with a cover-stick, or dare I say it as a guy, make-up or tinted moisturiser. If I could only find some form of pre-wash oil (which LindaSy provided with a face and body oil) or a moisturiser that could penetrate my dryness, then I would at least be able to cover up my unsightly condition. Anyhow I am waffling on now...I am 25 now and I am a recluse. I have no job, I hide from everyone, I have lost all my friends because I never go out. I used to be the best looking guy at school, and every girl used to love me, but now I can't even look at a person in the face. Life is a bitch, and I just wish there was something out there for my face that could at least allow me to control SD, even if a cure is impossible. Thanks for your time.

underwriter
Re: Apple cider vinegar — Prior to wetting hair, massage about half a teaspoon of ACV into scalp. Let it set at least 5 min. May burn a bit the first few times of use, but ride it out. Shampoo 2-3 times. Will produce a subtle, unpleasant cheese-like smell, but 1-2 weeks of daily use usually cures even the worst cases. My condition highly exacerbated by chocolate, so it can come back with poor diet choices.

sprattman
Re: Rash on face — I have suffered from seborrheic dermatitis for about 4 years mainly around my nose eyes and lips. I tried several treatments over a 3 year period but all seemed to have little affect. In the last year i have been treating myself on a daily basis with Tea tree oil from Coles ( about $9 per bottle ) and a 1% cortison cream called DERMAID available over the counter from the chemist ( about $14 a tube ). I noticed result within a week of starting the treatment and now i rarely have any symptoms at all. I still treat myself at least 2-3 times per week just to be sure. This has been fantastic for me as i had become so self concious about it and at times it would become so inflamed that it would be rather painful. I hope this is of some help to others that suffer from this condition. It's worked for me and it's relatively cheap. Goodluck